{"id":3995,"date":"2022-09-01T00:02:34","date_gmt":"2022-08-31T22:02:34","guid":{"rendered":"https:\/\/paddys.de\/?page_id=3995"},"modified":"2022-09-23T09:28:50","modified_gmt":"2022-09-23T07:28:50","slug":"der-paddy","status":"publish","type":"page","link":"https:\/\/paddys.de\/en\/der-paddy\/","title":{"rendered":"The Paddy"},"content":{"rendered":"<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\"><p>\u201eThe best ALS patient in the world\u201c<\/p><cite>The Imaginary Sick, page 1, P. Ruppelt 2022<\/cite><\/blockquote>\n\n\n\n<p><\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Diagnose\"><\/span>Diagnosis<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<p>First symptoms in August 2017: frequent stumbling while jogging in the forest, later nocturnal calf cramps and fasciculations. Six months of pointless visits to the doctor followed (\"You're perfectly healthy.\") until I admitted myself to Gro\u00dfhadern in March 2018. The result after a seven-day inpatient stay in the neurology department: amyotrophic lateral sclerosis (ALS). Today: care level 5, GdB 90%, tetraparesis, lung 0%<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Behandlungen\"><\/span>Treatments<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<ul class=\"wp-block-list\"><li>Progress monitoring at the Friedrich Bauer Institute<\/li><li>Neuro-physiotherapy<\/li><li>Speech therapy<\/li><li>GP visit<\/li><li>ENT doctor visit<\/li><\/ul>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Hilfsmittel\"><\/span>Resources<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<ul class=\"wp-block-list\"><li>Active wheelchair<\/li><li>Carbon wheelchair<\/li><li>Electric wheelchair<\/li><li>3x ceiling lift with drive motor in the bathroom<\/li><li>Bedroom and living room<\/li><li>Bath lifter<\/li><li>in the stairwell platform lift<\/li><li>Care bed<\/li><li>Anti-decubitus soft bedding mattress<\/li><li><a href=\"https:\/\/paddys.de\/en\/augensteuerung\/\" title=\"Eye control\">PC Eye Control Tobii Dynavox PCEye and Communicator on Surface Pro 8<\/a><\/li><\/ul>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Gerate\"><\/span>Devices<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<ul class=\"wp-block-list\"><li>Ventilation 2x Resmed Astral 100 (1x active, 1x stand-by)<\/li><li>Nose mask (day)<\/li><li>Nose and mouth mask (night)<\/li><li>Cough Assistant Philips Cough Assist E70<\/li><li>Suction Vacuaide<\/li><li>Inhalation Multisonic<\/li><li>Cannabis Vaporizer Vapormed Volcano MEDIC 2<\/li><li>Technics SL-1200MK2<\/li><\/ul>\n\n\n\n<pre class=\"wp-block-verse\">Time is precious. Waste it wisely.<\/pre>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Berufsausubung\"><\/span>Professional practice<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<p>Managing director of a successful IT company. Yes, I am actually still working and earning good money.<\/p>\n\n\n\n<p><\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Vorlieben\"><\/span>Preferences<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<p>Spending the good money. Buying nice things, giving nice things away, listening to records, smoking, freshly squeezed mango juice, thinking about the world.<\/p>\n\n\n\n<p><\/p>\n\n\n\n<pre class=\"wp-block-verse\">Sex, drugs &amp; all kinds of music<\/pre>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Einsatzort\"><\/span>Location<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<p>My condominium in the historic part of Gr\u00fcnwald, within walking distance of the Isar. Separate room for carers with TV, Netflix, Prime, TV Now, Joyn. Wifi multifunction printer, 100 Mbit WLAN, iPad Air. Sofa, guest bed. Nespresso Pro gastro coffee machine, 2,000 capsules of coffee in stock, 200 types of spirits. 20 square metre covered balcony for smokers.<\/p>\n\n\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>\u201eDer beste ALS Patient der Welt\u201cDer eingebildete Kranke, Seite 1, P. Ruppelt 2022 Diagnose Erste Symptome im August 2017: h\u00e4ufiges Stolpern beim Joggen im Wald, sp\u00e4ter n\u00e4chtliche Wadenkr\u00e4mpfe und Faszikulationen. Es folgen sechs Monate sinnlose Arztbesuche (\u201eSie sind kerngesund.\u201c), bis ich mich im M\u00e4rz 2018 selbst in Gro\u00dfhadern einliefere. Ergebnis nach sieben Tagen station\u00e4rem Aufenthalt auf der Neurologie: Amyotrophe Lateralsklerose (ALS). Heute: Pflegegrad 5, GdB 90%, Tetraparese, Lunge 0% Behandlungen Verlaufskontrolle im Friedrich-Baur-InstitutNeuro-PhysiotherapieLogop\u00e4dieHausarztvisiteHNO-\u00c4rztin-Visite Hilfsmittel AktivrollstuhlCarbon RollstuhlElektro-Rollstuhl3x Deckenlifter mit Fahrmotor im BadSchlafzimmer und WohnzimmerBadewannenlifterim Treppenhaus PlattformliftPflegebettAnti-Dekubitus Weich-lagerungsmatratzePC-Augensteuerung Tobii Dynavox PCEye und Communicator an Surface Pro 8 Ger\u00e4te Beatmung 2x Resmed Astral&#8230;<\/p>","protected":false},"author":1,"featured_media":3997,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_lmt_disableupdate":"","_lmt_disable":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"footnotes":""},"class_list":["post-3995","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"wps_subtitle":"","_links":{"self":[{"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/pages\/3995","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/comments?post=3995"}],"version-history":[{"count":8,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/pages\/3995\/revisions"}],"predecessor-version":[{"id":4015,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/pages\/3995\/revisions\/4015"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/media\/3997"}],"wp:attachment":[{"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/media?parent=3995"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}