{"id":4168,"date":"2022-09-08T14:15:06","date_gmt":"2022-09-08T12:15:06","guid":{"rendered":"https:\/\/paddys.de\/?p=4168"},"modified":"2022-09-08T17:04:17","modified_gmt":"2022-09-08T15:04:17","slug":"meine-hilfsmittel","status":"publish","type":"post","link":"https:\/\/paddys.de\/en\/meine-hilfsmittel\/","title":{"rendered":"My tools"},"content":{"rendered":"Reading time<\/span> 2<\/span> Minutes<\/span><\/span>\n

As we have already established, everything always seems different with me than with everyone else.<\/p>\n\n\n\n

I am ventilator-dependent, but have nevertheless opted for mask ventilation. Unfortunately, most people are put off by this at first. But it is easy to put on the masks comfortably and precisely. Even without pressure points despite zero leakage. You just need someone to explain and show you one or two tiny details that are important. If you know them, it works perfectly with the NIV mask. But if you don't know the finer points, no chance, it won't work. Unfortunately, handover and training are not competencies in the job profile of nursing staff. So I'll do it. Because it's important.<\/p>\n\n\n\n

I can barely purse my lips, my jaw and cheek muscles can't even manage to get water horizontally through a straw into my mouth. It takes my lame tongue two minutes to move a Pantoprazole from the tip of my tongue to the back of my palate. Nevertheless, I have decided - at least until today - against a PEG. Because, to stay with the Pantoprazole example, once the tablet has reached the roof of my mouth, I swallow it even without liquid. To this day, I have never swallowed a Pantoprazole tablet. Fact. I have choked on saliva hundreds of times, but no PEG can help me against that. So in order to take in food and liquid, I need creative aids. And I promise you, it works. But even then, only if you know and understand how. So it's important. I'll explain.<\/p>\n\n\n\n

I have already said how important the humidifier is. That's why I also explain how to operate it.<\/p>\n\n\n\n

And such supposedly simple things as a cannabis vaporiser, with which even the densest stoner can cope, have already caused quite a lot of superfluous frustration. But the vaporiser isn't there (just) for fun either, it saves me from having to take six different drugs, four of which are really heavy and have gross side effects. And yes, you've got it, I also explain this nice device.<\/p>\n\n\n\n

I will explain every other aid. It is not acceptable that even today, nursing staff who have never seen a cough machine should ensure my survival. So let's go ahead and start gl<\/p>\n\n\n\n

So let's go ahead and get started right away. If you don't have any coffee yet... now is the time to get some. Good coffee is always good.<\/p>\n\n\n\n

<\/div>\n\n\n\n
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back to \"Daily schedule \u00a8Calendar\"<\/a><\/div>\n\n\n\n
continue to \"Philips Respironics Amara View Nasal Mouth Mask\"<\/a><\/div>\n<\/div>\n\n\n\n
<\/div>","protected":false},"excerpt":{"rendered":"

Wie wir schon festgestellt haben, bei mir scheint immer alles anders zu sein als bei allen anderen. Ich bin beatmungspflichtig, habe mich aber trotzdem f\u00fcr die Maskenbeatmung entschieden. Das schreckt die meisten leider erst einmal ab. Dabei ist es easy, die Masken bequem und passgenau aufzusetzen. Sogar ohne Druckstellen trotz null Leckage. Es muss einem nur mal jemand ein, zwei winzige Kleinigkeiten erkl\u00e4rt und gezeigt haben, auf die es ankommt. Kennt man die, klappt es auch mit der NIV Maske einwandfrei. Kennt man die Feinheiten aber nicht, keine Chance, dann funktioniert es nicht. Leider ist das mit \u00dcbergabe und Einarbeitung…<\/p>","protected":false},"author":1,"featured_media":4169,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_lmt_disableupdate":"","_lmt_disable":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"footnotes":""},"categories":[34],"tags":[38,35,36,56,37],"class_list":["post-4168","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-handbuch","tag-als","tag-amyotrophelateralsklerose","tag-amyotrophiclateralsclerosis","tag-kennstduals","tag-seltenekrankheiten"],"acf":[],"modified_by":"Ruppelt Patrick","wps_subtitle":"","_links":{"self":[{"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/posts\/4168","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/comments?post=4168"}],"version-history":[{"count":2,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/posts\/4168\/revisions"}],"predecessor-version":[{"id":4186,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/posts\/4168\/revisions\/4186"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/media\/4169"}],"wp:attachment":[{"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/media?parent=4168"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/categories?post=4168"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/paddys.de\/en\/wp-json\/wp\/v2\/tags?post=4168"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}