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Table of contents

There is still a lot of content missing in the web version. I am trying to close the gaps quickly.

  1. Care instructions with a difference
    1. Emergency sign
    2. Things that must not happen
    3. When we get stuck
    4. Little things that make me happy
    5. And I don't like that at all
    6. Diagnosis
      1. The course of the disease in fast motion
      2. Sensory and motor skills
      3. Pain sensation
  2. Emergency plan
  3. Medication
  4. Daily routine / calendar
  5. Cyborg stuffy
    1. PEG (stomach tube)
      1. Fixing the PEG
    2. Bladder catheter
  6. My tools
    1. Philips Respironics Amara View Nasal-Mouth Mask
      1. Putting on the nose-mouth mask
      2. Lose weight
      3. Description of the individual parts of the nose and mouth mask
    2. ResMed AirFit N20 Classic Nasal Mask
      1. Description of the individual parts of the nose mask
      2. Putting on the nose mask
      3. Removing the nose mask
      4. Disassembling the nose mask
      5. Assembling the nose mask
      6. Cleaning the nose mask
      7. Solution to all problems
    3. Change mask
      1. Change nose-to-mouth mask to nose mask" >Change nose-to-mouth mask to nose mask
    4. My hose. Part of my body.
      1. This way the hose is in the right position.
      2. Hose water.
    5. ResMed Astral 100 (ventilation)
      1. Application
      2. Ordinance
    6. WiLAmed AIRniva (respiratory gas humidifier)
    7. Philips/Respironics E70 (cough assistant)
      1. Application
      2. Ordinance
    8. Multisonic medication nebuliser (inhalation, cold)
    9. VaporMed Volcano Medic 2 (inhalation, hot)
    10. Preparation (fill with capsule)
    11. Smoking (Actually inhalation)
    12. Cleaning (after each use)
    13. Complete cleaning
      1. Cleaning the filling chamber
      2. Cleaning the hot air generator
      3. Reusability of the valve balloon or hose
    14. Effect and impact
    15. Surface (Tobii eye control)
      1. Alignment (positioning) of the stand
      2. Storage of yours truly for laptop work
      3. Troubleshooting
        1. Known errors (part 1)
        2. Known errors (part 2)
  7. Storage of my body
    1. Supine with head to the right
    2. Micropositioning torso and back
    3. Micropositioning legs
    4. Put legs up
    5. Lateral position left
    6. Lateral position right
    7. Sitting up (sitting)
    8. Drive down again (lie down)
    9. Stretch and extend fingers
    10. Positioning of my right ear
    11. Problem of lack of bedding: pressure sores
  8. Hygiene and care
    1. Urination ("wee-wee")
    2. Facial care is replaced by 8.5.4)
    3. Dental care (replaced by 8.5.3)
      1. Problem 1: Bleeding gums with mask
      2. Problem 2: my battered gums
    4. Basic care
      1. Clean eyes
      2. Lip care
      3. Oral care (replaces 8.4)
      4. Facial care (replaces 8.2)
      5. Body wash from foot to head
      6. Scrub neck, shoulders and back
      7. Intimate wash
      8. Hair brushing
    5. Pedicure
    6. Manicure
    7. Shave (face)
    8. Shaving (breast, armpits, intimate shaving)
    9. Medical ear cleaning
    10. Hairstyle
    11. Hairdresser
  9. Food & Drink
    1. Problem slime formation
    2. Panto coffee
    3. My daily coffee pleasure
    4. Breakfast
    5. Ice water
    6. Water via PEG pump
    7. Drinking food always by bolus
    8. Medication always by bolus
    9. Smoke cigarette
  10. Therapy & doctor's visits
    1. Physiotherapy
      1. Exercises for in between
      2. Physio Exercise 1: Shoulder Pull
      3. Physio exercise 2: Stretching the armpit
      4. Physio-exercise 3: Nerve-protecting positioning
    2. Neuro-physiotherapy
    3. Speech therapy
    4. GP visit
    5. ENT doctor visit
  11. Orders
    1. No co-payment exemption
    2. Medication @ Mary's Pharmacy, Grünwald
    3. Drinking food @ Schubert Pharmacy, Pullach
    4. Medical Supply Store @ Vivisol Germany
    5. PEG Supply @ Vivisol Intensive Care
    6. Wheelchair & Co. @ Reha Team Oberland
    7. Everything under 5,- € @ Amazon
  12. Daily routine
    1. Sleep
    2. Laptop work
    3. Co-Working with Sis
    4. Listen to a record
    5. Celebrate
    6. Give me five
    7. The perfect day.
  13. The "Schorrerhof" estate
    1. Neighbours
    2. Premises
    3. Laundry room
    4. My cellar
    5. Underground car park
    6. Waste disposal
  14. My flat
    1. Key, emergency key
    2. Smart Home
      1. Amazon Alexa (voice control)
      2. Philips Hue (Light)
      3. Elgato Eve (Heating)
      4. Nuki (door lock)
      5. Our "Gagi" named Paul (Deebot vacuuming and mopping robot)
    3. Coffee maker
    4. Juicer
    5. Dishwasher
    6. Refrigerator
    7. Balcony
    8. Technology
      1. Internet
      2. Video conference
    9. Where do you find what?
    10. What my belongings were not bought for
  15. My thoughts about
    1. Hope
    2. Assault, taking advantage of position
  16. Doctor's letters
  17. Important contacts
  18. Change history
  19. Yes/No Checklists
    1. Change mask to mouth-nose mask
    2. Go to sleep
    3. Emergency plan