Dear Diary,

Not long ago I wrote something about how little pain I feel in general. Or at least I don't let it show. However, there were one or two things I left out.

In my last article on the subject of pain, I only dealt with acute, or if you want to call it that, spontaneous pain. For example, rheumatic pain, cramps in the digestive tract, immanent stinging with a urinary tract infection or a bladder infection are difficult to pigeonhole. It depends on the overall situation. The immediate pain is usually not bad. It only becomes problematic when it doesn't stop and keeps me constantly busy.

Instead of my usual routine of challenging my brain - at the same time doing (or having done) nursing, doing my consultant job for a Munich IT system house, managing my not-so-small stock portfolio, watching videos on YouTube that would probably have to be called educational TV, listening to music (yes, I listen to music while watching videos because otherwise too little happens to me) and writing posts like this one - I end up lying there bored and almost apathetic because I can't concentrate on anything. A serious problem for me.

I have been in exactly this situation sporadically for several weeks. The tendency is clearly increasing. At the moment, I have renewed pain in my right shoulder, neck and throat practically every morning and at times during the day. When it starts, it is quick. Within a few minutes the constant pain becomes unbearable. Other ALS sufferers probably also have this problem. Because the underlying problem is probably due to the fact that I always look to the right because of better breathing, while my shoulder and neck muscles naturally don't necessarily get better because of the disease.

Fortunately, there are two remedies for this:

  1. Administer Novalgin, 30-40 drops once is usually sufficient.
  2. Physiotherapeutic exercises that I will demonstrate on the following pages.