Page views: 473 It was so well prepared and planned. After last year fell through, everything should be better this year 2025. I've finished so many pages of text that some of it will be set to music - because nobody reads that much text. And then there was my editor, who blacked out one or two passages...
Page views: 102 And suddenly it's food or no food: Nestlé food or no food So. This article and the research on it will be exciting. For medical reasons, I am no longer dependent on receiving my tube feeds by bolus (syringe), but via the PEG pump. My previous tube feed, restoric® supportiv S Vegan from Vitasy, which I have been very happy with for years, has unfortunately...
Pageviews: 76 It's time for a new profile picture again. Which I actually think is quite successful, so I like it. I've been writing about the climatic effects, impact, morals and ethics as well as the legal classification of the use of artificial intelligence (AI) in art and journalism for some time now - without AI - on a...
Page views: 156 About ALS, eye pain and underestimated diagnoses The Sunday question(s). In conversation with my sister. Sandra is my ophthalmologist. The fifth past interview, recorded on Monday, 24 February 2024. Katrin: How's the eye actually doing? Should I send the ophthalmologist a current photo? Patrick: Yesterday wasn't good. Better again today. Katrin: Can you pinpoint what...
Pageviews: 107 Guest post by Yvonne Butter For all those who don't know me yet or know me or probably know me somehow.... and why I have decided to support relatives of people with intensive care needs who are cared for at home online... ??I came to this wonderful planet over 40 years ago.... Until I was 30 years old, my life was quite...
Seitenaufrufe: 131 Manchmal ist Schmerz nicht das Schlimmste. Es ist der Kampf, gehört zu werden. Der tägliche Kampf, in einer Welt, die dir immer wieder erklärt, was du brauchst – ohne zuzuhören. Es wurde entschieden, dass ich bis zur nächsten Visite kein Schmerzmittel mehr bekomme. Die Gründe? Ach, wer weiß. Vielleicht Bürokratie, vielleicht Prinzipien, vielleicht die Sorge um Nebenwirkungen...
Page views: 178 The fourth past interview with Tom and Patrick, recorded on 15 November 2024. This interview was originally due to be published in November 2024. But then an applicant cancelled shortly before her first shift in December. I decided not to publish the article for the time being to avoid the applicant's cancellation being associated with my blog...
Page views: 171 About conjunctivitis, conjunctivitis again and if I tell you now, I'll take all the suspense out of itThe Sunday question(s). In conversation with Marion and my sister. The third past interview, recorded on Thursday, 25 December 2024. Completed in the first week of January 2025. Patrick: How nice that you two are here. Today I'm turning the tables on you. Today I'm...
Page views: 173 First things first: #shameondenmark 💔 #shameonfaroeislands #shameonisland #shameonjapan @mette @peterhummelgaard #freepaulwatson #cpwf My past few weeks have been... mentally tough. So harsh, in fact, that I stopped publishing posts I'd already finished writing, like this one from 17 September. To make matters worse, I was accused on Instagram for my first cover story about Paul Watson of harming the environment by...
Page views: 216 My fight against bureaucratic madness As if I didn't already have enough with ALS. For years, I have not only been fighting against an incurable disease, but also against a system that makes my life even more difficult. Today is another day when I realise how degrading and inhuman our bureaucratic system can be. The medical...
