Page views: 417 It was so well prepared and planned. After last year fell through, everything should be better this year 2025. I've finished so many pages of text that some of it will be set to music - because nobody reads that much text. And then there was my editor, who blacked out one or two passages...
Page views: 97 And suddenly it's food or no food: Nestlé food or no food So. This article and the research on it will be exciting. For medical reasons, I am no longer dependent on receiving my tube feeds by bolus (syringe), but via the PEG pump. My previous tube feed, restoric® supportiv S Vegan from Vitasy, which I have been very happy with for years, has unfortunately...
Pageviews: 75 It's time for a new profile picture again. Which I actually think is quite successful, so I like it. I've been writing about the climatic effects, impact, morals and ethics as well as the legal classification of the use of artificial intelligence (AI) in art and journalism for some time now - without AI - on a...
Seitenaufrufe: 146 Über ALS, Augenschmerzen und zu kurz gedachte Diagnosen Die Sonntagsfrage(n). Im Gespräch mit meiner Schwester. Sandra ist meine Augenärzti. Das fünfte Vergangenheitsinterview, aufgezeichnet am Montag, den 24. Febraar 2024. Katrin: Wie geht’s denn dem Auge eigentlich?Soll ich der Augenärztin mal ein aktuelles Foto schicken? Patrick: Gestern war nicht gut. Heute wieder besser. Katrin: Kannst du festmachen, woran...
Pageviews: 105 Guest post by Yvonne Butter For all those who don't know me yet or know me or probably know me somehow.... and why I have decided to support relatives of people with intensive care needs who are cared for at home online... ??I came to this wonderful planet over 40 years ago.... Until I was 30 years old, my life was quite...
Page views: 125 Sometimes pain is not the worst thing. It's the struggle to be heard. The daily struggle to be heard in a world that keeps telling you what you need - without listening. It's been decided that I won't get any more painkillers until the next visit. The reasons? Oh, who knows. Maybe bureaucracy, maybe principles, maybe worries about side effects...
Seitenaufrufe: 170 Das vierte Vergangenheitsinterview mit Tom und Patrick, aufgezeichnet am 15.11,2024. Dieses Interview sollte ursprünglich im November 2024 veröffentlicht werden. Doch dann sagte eine Bewerberin kurz vor ihrem ersten Dienst im Dezember ab. Ich entschloss mich dazu, den Artikel vorerst nicht zu veröffentlichen, um zu vermeiden, dass der Rückzieher der Bewerberin mit meinem Blog in Verbindung gebracht werden...
Page views: 167 About conjunctivitis, conjunctivitis again and if I tell you now, I'll take all the suspense out of itThe Sunday question(s). In conversation with Marion and my sister. The third past interview, recorded on Thursday, 25 December 2024. Completed in the first week of January 2025. Patrick: How nice that you two are here. Today I'm turning the tables on you. Today I'm...
Pageviews: 168 First things first: #shameondenmark 💔 #shameonfaroeislands #shameonisland #shameonjapan @mette @peterhummelgaard #freepaulwatson #cpwf My past few weeks have been... mentally tough. So harsh, in fact, that I stopped publishing posts I'd already finished writing, like this one from 17 September. To make matters worse, I was accused on Instagram for my first cover story about Paul Watson of harming the environment by...
Page views: 215 My fight against bureaucratic madness As if I didn't already have enough with ALS. For years, I have not only been fighting against an incurable disease, but also against a system that makes my life even more difficult. Today is another day when I realise how degrading and inhuman our bureaucratic system can be. The medical...
