seltenekrankheiten

Nestlé food or no food

Page views: 100 And suddenly it's food or no food: Nestlé food or no food So. This article and the research into it will be exciting. For medical reasons, I am no longer dependent on receiving my tube feeds by bolus (syringe), but via the PEG pump. My previous tube feed, restoric® supportiv S Vegan from Vitasy, which I have been very happy with for years, has unfortunately...

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New picture, new... new discussion

Pageviews: 75 It's time for a new profile picture again. Which I actually think is quite successful, so I like it. I've been writing about the climatic effects, impact, morals and ethics as well as the legal classification of the use of artificial intelligence (AI) in art and journalism for some time now - without AI - on a...

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My eyes: My thesis - Simple. Logical. Tragic.

Page views: 147 About ALS, eye pain and underestimated diagnoses The Sunday question(s). In conversation with my sister. Sandra is my ophthalmologist. The fifth past interview, recorded on Monday, 24 February 2024. Katrin: How's the eye actually doing? Should I send the ophthalmologist a current photo? Patrick: Yesterday wasn't good. Better again today. Katrin: Can you pinpoint what...

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Pain subsides

Page views: 127 Sometimes pain is not the worst thing. It's the struggle to be heard. The daily struggle, in a world that keeps telling you what you need - without listening. It's been decided that I won't get any more painkillers until the next visit. The reasons? Oh, who knows. Maybe bureaucracy, maybe principles, maybe worries about side effects...

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Care at the breaking point

Page views: 172 The fourth past interview with Tom and Patrick, recorded on 15 November 2024. This interview was originally scheduled to be published in November 2024. But then an applicant cancelled shortly before her first shift in December. I decided not to publish the article for the time being to avoid the applicant's cancellation being associated with my blog...

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Ready for hospital at Christmas (Part 1+2)

Page views: 167 About conjunctivitis, conjunctivitis again and if I tell you now, I'll take all the suspense out of itThe Sunday question(s). In conversation with Marion and my sister. The third past interview, recorded on Thursday, 25 December 2024. Completed in the first week of January 2025. Patrick: How nice that you two are here. Today I'm turning the tables on you. Today I'm...

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THIS IS WHY Denmark stands by Japan

Page views: 172 First things first: #shameondenmark 💔 #shameonfaroeislands #shameonisland #shameonjapan @mette @peterhummelgaard #freepaulwatson #cpwf My past few weeks have been... mentally tough. So harsh, in fact, that I stopped publishing posts I'd already finished writing, like this one from 17 September. To make matters worse, I was accused on Instagram for my first cover story about Paul Watson of harming the environment by...

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The past interview experiment

Page views: 849 ? On Sunday, my sister from Spain visited me again for a day before she had to return home. She was last in our old home town of Herzogenaurach, the „world city of sport“. adidas and PUMA are at home here, but also many lesser-known and more well-known employers such as the automotive supplier INA Schaeffler. A tragedy...

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