Dear Diary,

For the last time, the management of my care service has managed to disappoint me across the board. Once again I have been taken for a ride.

Yes, crass choice of words for a crassly shitty situation.

One drama follows the next. After the last scandal, the management raved to me about what they were planning with regard to the full-time positions that needed to be filled. Which guys and gals will finally help us to form a solid team here. But obviously my cognitive abilities are paralysed every time, as if at the push of a button. Because what I've always been able to do so well in about 30 years of work - listening, understanding and subconsciously remembering the exact wording of all the relevant sentences of my conversation partner - no longer works at all as soon as I talk to the management (GF). My brain seems to party and come up with things that I think I heard days later. Too crass, no joke. Is completely atypical of ALS and to my knowledge has never been documented. Wink smiley.

The fund would have to pay for at least 5.3 full-time positions, according to my estimated head calculation. Really well-paid full-time positions. But really well paid. Nobody tells you the exact figures. But I can say one thing for sure. When I was in my early 20s, I didn't even have half of that on my pay slip. But we only have three full-time positions at the moment. So we are 2.5 short. There is no question that these vacancies will be filled so that a routine can finally be established and a certain standard of care can be maintained. On this point, I have great hope from a recent telephone conversation with the manager. Yes, now all of a sudden she has several good people coming in for induction. The first one will come tonight and into the night, for as long as it takes.

Hm... this does not correspond to what we discussed in terms of familiarisation. At least one full day shift and one full night shift, accompanied by an experienced nurse, that's what we agreed. Well, at least it's nice that we're filling the three positions. Once we have a full team and not everyone has to work around 200 hours a month - plus overtime, of course - we'll manage the rest somehow.

A new carer who has worked for my care service before. Back on the job because of child and children. And in my team from now on. Someone with experience. That's good. We could use someone like that.

The training was short and painless. The mask change worked and that's all we're really interested in. Well, we are interested, of course. But if there is no time for that, you have to concentrate on the essential things. Little things, like ventilation and so on.

As for this new nurse, the disillusionment comes with the new duty roster. Three duties. In future, probably two on a regular basis. So we are far from covering the 2.5 full-time positions.

Maybe at the next nurse's induction. That makes a solid impression here. Competent, qualified, gets along with me and has the capacity to really help us out here. He's going to take over some of the services that need to be filled in the next few days. That was a last-minute rescue.

But here, too, euphoria is followed by immediate disappointment when I see the new roster. History repeating. Full-time? Part-time? No? Mini-job perhaps? Not either? Then I don't know either. Really, I don't know what this shit is about. This new top nurse is working on another patient after all. My scheduled services: Zero.

One more. But now. The best for the end.

Very fresh keeper. Hired separately. Now we're talking. The previous variant of covering just under half of my services by pulling people from other teams and then in turn sending those who were scheduled here to those other teams on other patients, if you'll pardon the expression, is bullshit. Just like scheduling people with 200 hours. On edge.

All right then, let's go, familiarisation, put your foot down.

You won't believe how this turns out. To be continued. First thing in the morning...