lifelessons

The thing about the thing

Page views: 888 Part 3 of 3 Shitting has to be learnt. New day, new luck. Have you digested yesterday's post yet? Well, I'm only moderately so. To be honest, my enthusiasm for writing about my ridiculous Pippifax problems has not yet returned. But this should be the shortest part by far. If you missed the first two, you can find them here...

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The thing about the thing

Pageviews: 817 Part 2 of 3 Problems that mean the world. Can. But definitely do when they do. We were in trouble. And I'm starting an extra post for that? Actually, yes. Over the last few weeks, months and years, I have repeatedly experienced the lack of understanding about my ALS disease. Especially when it comes to medical...

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Inventory Olé

Seitenaufrufe: 810 Liebes Tagebuch, es kam, wie es kommen musste. Wie es immer kommt, wenn ich versuche, meinen Mitmenschen die Zeit bei mir zu versüßen. Meine Großzügigkeit wird gnadenlos ausgenutzt. Vermutlich nicht einmal absichtlich und böswillig sowieso nicht. Aber am Ergebnis ändert das nichts. Tagelang beschäftigen tut das mein Hirn. Mein Puls rast, statt 60-70 in Ruhe kann ich...

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The €7,000 PEG

Page views: 899 Nothing but stress and trouble And there it was, the PEG. Secretly, quietly and silently. Kaboom. To be honest, it was planned a little differently, my reporting. I hadn't intended to wait over three months to do it. But it wasn't planned that I would have a lot of problems during the first eight weeks with the...

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The Long Night-Day-Day-Night

Seitenaufrufe: 1,338 Was ein Wochenende. Da habe ich glatt ein paar Tage gebraucht, um wieder unter die lebenden zu kommen. Dabei war das doch überhaupt keine riesige Party, so gesehen. Nicht einmal zehn Personen waren wir. Also zumindest nicht zeitgleich. So viel steht fest. Dafür gingen die Feierlichkeiten umso länger. Von Freitagabend bis Montag früh, wenn man so will....

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Of course you visit me

Page views: 1,376 This question is very popular. Am I allowed to visit you or are you uncomfortable? In itself, the question is understandable. But hey, I don't necessarily look like that, but I'm still the same complete arsehole I used to be. Nothing has changed about the fact that I like company and can get anyone into bed. And let's see...

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Acknowledgement

Pageviews: 1,123 Awesome shit. You'd think there was nothing going on in my life. And yet I'm plagued by the little bit of conscience I still have. I haven't answered so many messages, or at least not properly. So many lovely people who shared my original post (and there were hundreds of them in the first few hours alone)...

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Supplementary budget Cigarette No. 1

Page views: 1,144 Supplementary budget for yesterday: all sorts of different types and flavours of tobacco from e-cigarettes stuffed into empty capsules of the Kiffomat 3.000 (better known to health insurance companies as Vapormed Volcano MEDIC 2 and if you ask me, it's a Storz & Bickl Volcano Hybrid) in a painstaking and delicate manual process. Huge thanks to Geli and Erik. So can...

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My care service fucked up

Seitenaufrufe: 1,094 Spoiler: Setz dich besser, bevor du weiterliest. Wenn du dich vom ersten Schock erholt hast teile meinen Post, tagge alle die mir helfen können, kommentiere und diskutiere mit… Mein Name ist Patrick, ich bin 42 Jahre alt, habe vor fünf Jahren die Diagnose ALS erhalten und behaupte trotzdem, mitten im Leben zu stehen und es zu genießen....

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