Pageviews: 766 Part 2 of 3 Problems that mean the world. Can. But definitely do when they do. We were in trouble. And I'm starting an extra post for that? Actually, yes. Over the last few weeks, months and years, I have repeatedly experienced the lack of understanding about my ALS disease. Especially when it comes to medical...
Pageviews: 777 (Part 1 of 3 Nothing in our lives can be taken for granted. Not even the ability to take a shit. Nice shit. Rarely is this expression more apt than in this context. Because today I want to dish up some shit for you. To be precise, I want to tell you about this very thing. I've neglected writing for the last two days for some reason. Instead...
Seitenaufrufe: 808 Vermeintlich ein langweiliges Thema. Kommt aber, wie so oft im Leben, auf den Blickwinkel an. Ist Maniküre abrechnungstechnisch andere zu bewerten als Pediküre? Offensichtlich ja. Über die Gründe dafür habe ich noch nichts gefunden. Ist Maniküre für einen Tetra (Patient mit vier gelähmten Gliedmaßen) vom Handling her denn anders zu bewerten, als eine Pediküre? Nö, ich kann...
Page views: 644 My pedicure has so far been carried out by a chiropodist, friends and family. After the latest „incident“ following the removal of supposedly dead skin, the question arose once again as to whether professional chiropody would be better suited to me. In and of itself, I would immediately say sure, that makes sense. But who is going to pay for it in the long term? The same thing...
Page views: 1,236 Every now and then a little change is really good. With this positioning method, my legs relax very well. Code word: leg positioning The position is basically the same as it always is when I lie on my back. Instead of placing my feet on the thin 40×80 pillow, however, you place it lengthways under my leg. And on the...
Pageviews: 714 Dear Diary, As much as the thought of changing care provider is on my mind, can I even seriously consider it? Imagine people working there with respect and common sense. What am I supposed to get upset about then? That's not possible. Somehow I can't shake the feeling that my excitement...
Seitenaufrufe: 687 Liebes Tagebuch, wieso fällt mir eigentlich nichts Erfreuliches mehr ein, über das ich berichten könnte? Man könnte fast den Eindruck bekommen, dass es mir im Moment nicht so sonderlich dolle geht. Kein Grund zur Sorge, ich springe nicht gleich von der nächsten Brücke. Der Aufwand, da überhaupt erstmal hinzukommen, erscheint mir deutlich zu hoch. Wenn du das...
Pageviews: 711 Actually, you should be slapped for this Baby Hit-list me one more time. A slap left and right, that would be the appropriate reaction. But no, as a pacifist I'm still holding out the other side of myself. Nice and stupid, but on the other hand, good things take time. And so, for the time being, I'll stick to the hopefully entertaining,...
Page views: 790 People simply don't want to believe me when I say that I'm not hungry or have no appetite right now and therefore don't want any more food to drink. People simply don't want to believe me when I say that 1.5 litres of the finest Munich tap water via the PEG will last me until 4pm. I'm not in the mood to drown. You want to...
Page views: 585 Well, basic care. What is there to say? Not much, you're the professional. I think a few key points will suffice. This was the end of my original description of basic care. But then everything changed. I was wrong. It's not clear how basic care should work for me after all. What specifically...
