Care tips

Daily routine / calendar

Page views: 1,061 If, like me, you are dependent on outside help for every little thing, no matter how small, a structured daily routine can be enormously helpful, even for a crazy slob like me. Display The current daily schedule is shown on the large portrait-format POI display. You can see everything here: which therapy is due, which doctor is coming when and why, when I...

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Medication

Page views: 984 Note: If you don't do everything yourself... I'll rewrite the medication plans as soon as I can find an hour to do it. Because the ones I had from the old nursing service were so wrong. It's an indictment that in eleven months they haven't managed to at least correct this and document it properly. The following medication plans are...

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Emergency plan

Page views: 1,050 Yes, I know that there is something like this somewhere in the file of every care service. Theoretically. Maybe even practically. But even then, such plans remain pure theory. They don't work in practice. I've experienced things that you can't imagine. A carer (who doesn't speak German, English, French or Spanish) seriously...

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Little things that make me happy

Page views: 1,254 It really doesn't take much to make me happy. As is so often the case, it's the little things that make life more beautiful. My fingers are constantly contracting. Unfortunately, this not only looks like shit and isn't exactly healthy, but it's also uncomfortable. So please stretch my fingers out again at every opportunity. When I...

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When we get stuck

Seitenaufrufe: 1,127 So gut vorbereitet, wie wir auch sein mögen, egal, wieviel Zeit wir miteinander verbringen werden, es wird immer Situationen geben, in denen du keinen blassen Schimmer hast, was ich brauche. Beim Schlafen beispielsweise trage ich die Nasen-Mund-Maske. Unter dieser ist es physikalisch unmöglich, ohne eigene Muskelkraft einen Überdruck der Ausatmung zu erzeugen. Ich kann deshalb mit dieser...

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Things that must not happen

Page views: 1,015 Some of these things hurt like hell, others are just frustrating or will annoy me to death if I live long enough to be annoyed to death. Still others are directly related to my breathing. They have an immediate effect on everything in my body. There's no room for discussion. What...

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Emergency sign

Seitenaufrufe: 1,002 Wenn alle Stricke reißen, verständige ich mich direkt über die Augen. Es ist deshalb enorm wichtig, dass du dich bei allen Tätigkeiten an und mit meinem Körper ausschlich auf mich fokussierst. Zeichen, die ich verwende: Schnelles Augenblinzeln (Augen schließen und öffnen sich ständig) Leg mich sofort komplett flach auf den Rücken mit Kopf nach rechts. Kein Putzen....

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Care instructions with a difference

Page views: 1,217 I wrote this collection of instructions myself using my eye control. I spent up to 18 hours a day in front of the monitor. I would therefore appreciate it if you would read my recommendations very carefully and take them to heart. Care instructions, aids for new and lateral entrants, version dated 22/07/2022, P. Ruppelt 2022 This is what it says...

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