To Do List for the Blind
Hang digital picture frames everywhere in the flat and on the smoker's balcony and in the guest WC that show live what needs to be done.
What actually happened with... team meeting?
Page views: 557 There was something, let me think. That's right. That was yesterday. Not that I'd forgotten. Or assumed that I wouldn't be forgotten this Mel. I don't want to hypothesise about the reasons for this, that would be an unnecessary waste of energy. I'm just saying that I've already told everyone that...
His 6th words
Page views: 519 aka ventilator weaning for ALS My personal highlight of the otherwise less amusing second half of the week, i.e. last week: a letter from the medical service to my care service. There are new forms again and the old ones no longer work. This is the second time since my illness began. But you can really make life difficult for yourself. That...
His 4th words
Page views: 506 (aka medication chaos) So I really have to get one thing off my chest. Yes, documentation is a bottomless pit. Wanting to update existing documentation is a Pandora's box. But my arse. I'd rather have no documentation at all than what they've been working on - or at least what they've been working with - since last year. It...
His 3rd words
And so, as is often the case, a message is sent to the management. And bombshell it was. It woke up a few people there and sent them into a frenzy. The very next morning, the whole baggage of my nursing service was there without any agreement. Management, quality management, team leaders. And nurses, of course. And my parents, who were visiting.
His 2nd words
Seitenaufrufe: 567 So ungefähr sieht das aus, wenn ich sage, der Screenshot sei selbsterklärend. Hier hätten wir beispielsweise eine E-Mail, die in der zweiten Wochenhälfte für viel Unverständnis und resignierendes Kopfschütteln bei meinem Arzt sorgte. So lustig das sich ex post anhören mag, wir reden hier immerhin noch von zwei Tagen unnötigen Fiebers. Und so sah meine Mitteilung aus:...
Perceptual disorders for breakfast
Page views: 600 Welcome to my world of maximum 3.5 hours of sleep. It's been like this for about two weeks now. Even in the presence of my sister and taking photos to explain, I'm told I'm wrong. The mask is on correctly. Apart from pulling it even tighter - which doesn't make it blow into my eyes any less, it just doesn't even blow into my eyes any more...
No word on Sunday
Page views: 515 Dear diary, ouch. This week is already off to a good start. If I don't publish anything at the weekend of all days, it's usually for the same reason. Without wanting to attach any importance to it: Maintenance. And without wanting to put a stamp of approval on care, individual positive achievements cannot hide the miserable overall performance of my care service. True story....
Pedicure
Page views: 675 So far, my pedicure has been carried out by a chiropodist, friends and family. After the latest „incident“ following the removal of supposedly dead skin, the question arose once again as to whether professional chiropody would be better suited to me. In and of itself, I would immediately say sure, that makes sense. But who is going to pay for it in the long term? The same thing...
You are right and I mean peace
Seitenaufrufe: 764 Liebes Tagebuch, so sehr mich der Gedanke beschäftigt, den Pflegedienst zu wechseln, kann ich das überhaupt ernsthaft in Erwägung ziehen? Stell dir mal vor, dass da Leute mit Respekt und gesundem Menschenverstand arbeiten. Über was soll ich mich denn dann noch aufregen? Das geht doch nicht. Irgendwie werde ich das Gefühl nicht los, dass sich meine Aufreger...