Page views: 652 Let's see, what else happened that was exciting? One of my carers got a new tattoo while he was at home. It looks good. For me as a layman, it was also very neatly done. When I looked through the pictures of the studio where he works on Instagram, I noticed a few works in particular. The...
In this specific case, the AOK did not have to pay anything. Precisely because the expert was of the opinion that my ALS would not change anything in the medium term. I don't want to give too much away. But it will be good.
Page views: 838 Part 3 of 3 Shitting has to be learnt. New day, new luck. Have you digested yesterday's post yet? Well, I'm only moderately so. To be honest, my enthusiasm for writing about my ridiculous Pippifax problems has not yet returned. But this should be the shortest part by far. If you missed the first two, you can find them here...
Pageviews: 781 Part 2 of 3 Problems that mean the world. Can. But definitely do when they do. We were in trouble. And I'm starting an extra post for that? Actually, yes. Over the last few weeks, months and years, I have repeatedly experienced the lack of understanding about my ALS disease. Especially when it comes to medical...
Seitenaufrufe: 848 Vermeintlich ein langweiliges Thema. Kommt aber, wie so oft im Leben, auf den Blickwinkel an. Ist Maniküre abrechnungstechnisch andere zu bewerten als Pediküre? Offensichtlich ja. Über die Gründe dafür habe ich noch nichts gefunden. Ist Maniküre für einen Tetra (Patient mit vier gelähmten Gliedmaßen) vom Handling her denn anders zu bewerten, als eine Pediküre? Nö, ich kann...
Pageviews: 726 Dear Diary, As much as I'm thinking about changing care provider, can I even seriously consider it? Imagine people working there with respect and common sense. What am I supposed to get upset about then? That's not possible. Somehow I can't shake the feeling that my excitement...
Seitenaufrufe: 820 Man möchte mir einfach nicht glauben, wenn ich sage, dass ich jetzt gerade keinen Hunger und keinen Appetit habe und deshalb keine weitere Trinknahrung wünsche. Man möchte mir einfach nicht glauben, wenn ich behaupte, dass mir 1,5 Liter feinstes Münchner Leitungswasser über die PEG bis 16 Uhr reichen. Ich habe keinen Bock drauf, zu ertrinken. Man möchte...
Page views: 605 Well, basic care. What is there to say? Not much, you're the professional. I think a few key points will suffice. This was the end of my original description of basic care. But then everything changed. I was wrong. It's not clear how basic care should work for me after all. What specifically...
Page views: 538 If my carers had followed these instructions, they would still be relevant today and I would have been spared a lot of grief: When it comes to oral care, one thing is important above all else: Not wasting time and not scrubbing my gums. If the toothbrush switches off, the maximum recommended brushing time has been exceeded. We brush our teeth, not the towel underneath, not the...
Page views: 571 Wiping your face with lukewarm water is enough for me. A little shower gel every now and then is okay, but no more than that. However, if you use shower gel, I insist on rinsing again with clear water afterwards. And one more request: Before you soap me up in anything, look at what you're holding. Save us the...
