Page views: 679 My English tea-in-bed rice tray has proved its worth for smoking. The vaporiser stands stably and securely on it when you put it in bed with me to smoke. To be able to smoke, we need the vaporiser, the filled capsule holder and the tube with mouthpiece. The capsule holder is carefully screwed onto the vaporiser. Do not screw it too tightly, otherwise it will break...
Page views: 566 The first thing we need is a fresh capsule of cannabis. You can find them on the cooking island in the kitchen. I get the capsules pre-filled from the pharmacy. Because grinding the cannabis and filling the capsules is quite labour-intensive manual work, delivery sometimes takes two weeks. Please bear this in mind and let me know in good time if I need to reorder...
Page views: 773 I have a very big request on the subject of topping up the water in the humidifier. I emphasise this so clearly because I hope you will be the first to comply with my request. Special request: fill to at least 50% The humidifier must always, at all times, without exception, be filled to at least 50% with water. If there is less water in the humidifier, this...
Seitenaufrufe: 896 Die Geräteeinweisung muss aus rechtlichen Gründen durch meinen Versorger (Vivisol, Kontaktdaten siehe Kapitel „Wichtige Kontakte“) erfolgen. Da meine Beatmung nie ausgeschaltet wird und ich nur ein einziges Beatmungsprofil verwende, muss man dazu aber auch erst einmal nicht allzu viel wissen. Meine Geräte Ich verfüge über zwei baugleiche, identische Astral 100. Die Notfall-Maschine ist stets mit separatem Schlauch...
Seitenaufrufe: 704 Liebes Tagebuch, waren mal wieder ziemlich viele Ausgaben für meine Pflege und Behandlungen in den letzten Wochen. Gefühlt flattern hier fast täglich irgendwelche Zuzahlungsrechnungen ins Haus. Das stößt immer wieder auf Verwunderung bei meinen PflegerInnen und TherapeutInnen. Es scheint nicht viele ALS Patienten mit höchster Pflegestufe und 90% Schwerbehinderung zu geben, die nicht zuzahlungsbefreit sind. Aber genau...
Pageviews: 943 Hi there, it's a thing with the radio. Pretty much everything is repeated all the time. People are only too happy to claim that there are so many good musical, factual or other editorial alternatives that could be broadcast. Of course there could be, but every station that does this hasn't made it into the mainstream...
Page views: 603 Dear diary, a few turbulent days lie behind us. Between Easter week, a family visit and a panic attack, my carer has lost touch with reality and, as a result, two new carers have spontaneously started work. The first one yesterday in the late evening - some would call it „night“ if you don't finish until 1.00 am -...
Seitenaufrufe: 653 Liebes Tagebuch, es muss aber halt immer erst was passieren. Wieso muss ich eigentlich als Kunde, der ich schlussendlich bin, völlige Teilnahmlosigkeit an den Tag legen, damit der Ernst der Lage erkannt wird? Hunde, die bellen, beißen nicht. So sagt man. Wer mich kennt, der weiß, dass ich gerne mal meine Meinung argumentativ verteidige. Ganz besonders, wenn...
Page views: 912 Dear diary, my warmest Easter greetings. For the readers of my blog, I wish you a belated Happy Easter. I still blur the date and time of my posts to make it impossible for third parties to establish a direct link to a person. And obviously, while I was writing, I thought that these lines were probably written around Easter...
Page views: 656 Dear diary, it's not your fault and you probably care about it about as much as when a sack of rice falls over in China. Or even less. In the same way that a Bayern game captivates me, perhaps? I'm just not interested in football. Never mind, we'll have to get through this together. What is it? Do I pull that...
