als

Removing the nose mask

Page views: 964 Attention! The manufacturer's instructions only describe the basic procedure for patients who require ventilation for support and can still breathe independently while the mask is being changed. In my case, for example, since the mask is necessary for life support, we have to reconnect the tube much earlier and my ventilator is never switched off. This one...

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Putting on the nose mask

Page views: 1,043 Attention! The manufacturer's instructions only describe the basic procedure for patients who require ventilation for support and can still breathe independently while the mask is being changed. As the mask is necessary for life support in my case, for example, we have to reconnect the tube much earlier and my ventilator is never switched off. This one...

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Description of the individual parts of the nose mask

Page views: 941 As with all manufacturer instructions quoted, I will ask for permission in good time, but I would like to thank you in advance. The nose mask can be disassembled for cleaning (see section „Disassembly“). If the hose is stretched tight - which should never be the case, but happens every day - the nose mask can sometimes fall when it is put on...

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ResMed AirFit N20 Classic Nasal Mask

Seitenaufrufe: 998 Tagsüber trage ich die Nasenmaske. Sie gibt mir ein sicheres Gefühl und erlaubt mir zumindest eine teilweise mündliche Kommunikation. Die Nasenmaske hat neben der weiteren Möglichkeit zu essen und zu trinken noch einen anderen, ganz entscheidenden Vorteil gegenüber der Nasen-Mund-Maske. Durch Öffnen von Mund und Gaumen kann ich einen Überdruck im Hals aufbauen, über den ich Sekret...

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Description of the individual parts of the nose and mouth mask

Seitenaufrufe: 970 Das Kopfband wird einmalig am Muster der jeweils alten Maske eingestellt. Danach werden am obersten Band („crown strap“) sowie an den oberen Bändern keine Änderungen mehr durchgeführt, außer, ich sage es. Auch zum Waschen werden die Klettverschlüsse nicht angefasst! Die Bänder lassen sich dafür extra aus der Verankerung lösen, ohne die Klettverschlüsse öffnen zu müssen. Auf dem...

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Lose weight

Page views: 1,123 If you need tips on losing weight, I have a few in store. With ALS it's even more consistent than with the 25 kilometres I ran in 2:35 a while ago. I explain how to remove the mask in the section „Changing the mask“.

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Putting on the nose-mouth mask

Page views: 964 For a basic understanding of the process of putting on the mask, I will first refer you to the manufacturer's instructions and translate the whole thing for you. Attention! The manufacturer's instructions only describe the basic procedure for patients who require ventilation for support and can still breathe independently while the mask is being changed. Since the mask in...

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Philips Respironics Amara View Nasal-Mouth Mask

Page views: 925 Let's start with one of my most important tools of all. It is also the tool where the most mistakes are made, because nobody explains it properly and apparently everyone thinks it will work somehow. From my experience with over 40 intensive care nurses (or supposed intensive care nurses), I can assure you that this is a dangerous fallacy. What...

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My tools

Seitenaufrufe: 936 Wie wir schon festgestellt haben, bei mir scheint immer alles anders zu sein als bei allen anderen. Ich bin beatmungspflichtig, habe mich aber trotzdem für die Maskenbeatmung entschieden. Das schreckt die meisten leider erst einmal ab. Dabei ist es easy, die Masken bequem und passgenau aufzusetzen. Sogar ohne Druckstellen trotz null Leckage. Es muss einem nur mal...

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Daily routine / calendar

Page views: 981 If, like me, you are dependent on help for every little thing, no matter how small, a structured daily routine can be enormously helpful, even for a crazy slob like me. Display The current daily schedule is shown on the large portrait-format POI display. You can see everything here: which therapy is due, which doctor is coming when and why, when I...

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