amyotrophelateralsklerose

Perceptual disorders for breakfast

Page views: 543 Welcome to my world of maximum 3.5 hours of sleep. Been like this for about two weeks now. Even in the presence of my sister and taking photos to explain, I'm told I'm wrong. The mask is on correctly. Apart from pulling it even tighter - which doesn't make it blow into my eyes any less, it just doesn't even blow into my eyes any more...

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No word on Sunday

Page views: 477 Dear diary, ouch. This week is already off to a good start. If I don't publish anything at the weekend of all days, it's usually for the same reason. Without wanting to attach any importance to it: Maintenance. And without wanting to put a stamp of approval on care, individual positive achievements cannot hide the miserable overall performance of my care service. True story....

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Hit List (Week 24)

I inform my nurses and still inform my doctor. He comes by immediately. Inflammation again. Pus. Blood. Some contaminated ointment residue. Swab taken from the skin and sent to the lab. Thank you. To the whole team.

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Hit List (Week 23)

I would have to have a PEG inserted. Because then I could be mobilised in a wheelchair and pushed out onto the balcony, as living in bed has no quality of life. That's what I was told by the care counsellor at my care service.

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Slime everywhere you look

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After all

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Sun from ass

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The State of the Nation (Week 22)

Page impressions: 510 Or the question of how a report on the Tageskrve could mutate into an all-round attack on sustainability, global politics and stupid people. Fascinating. Maybe I'll postpone the daily curve until next time. In any case, I'm currently dealing with a completely different topic with exciting similarities. Can the earth still be saved? I don't think so. We have so...

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Long Week

Page views: 515 You don't start with „I“. But technically I don't either, when I start with that I don't start with that. So. Once again, I can't quite keep up with the writing. I've managed a bit more in the last few days. But because I'm publishing with a time delay so as not to make any reference...

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No financial tip

Page views: 504 I must have missed something. Of course, with my 24-hour intensive care, it's hard to avoid a carer noticing what I do all day long. And as I unfortunately don't know any method of releasing a TAN with just my eyes, my carers are allowed to do it for me. I can't blame anyone if they...

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