amyotrophelateralsklerose

Drive down again (lie down)

Page views: 581 I think the shutdown is self-explanatory. Just one thing: I put my head on the right side for much better breathing. I do this deliberately, it's the way it's supposed to be. Even if it looks to you as if my neck is going to break every second, believe me, it's all right. ? As soon as...

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A second eye control is needed.

Page views: 660 It doesn't help. My eye control is more and more important for survival. Once again I couldn't make myself noticed this morning because the mask slipped out of place and tightened. It's really rarely stupid. I'm lying there, listening to my carer in the kitchen, in the dining room watching the documentary, at the coffee machine. Whilst I've been lying there for 15...

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Physio exercise 3: Nerve-protecting positioning

Page views: 594 The third and final exercise in this series requires no effort at all, but is all the more effective. This is about positioning, which should ideally be done after the other exercises. As usual, I lie on my back with my head turned to the right. Normally, my arms are relatively parallel to my body. For this...

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Lateral position right

Page views: 601 You're doing the storage on my right side exactly the same as on the left side, only - surprise - mirror-inverted. My gaze is directed towards the balcony door. Because it is so important and is constantly forgotten, I emphasise three things regarding the lateral position in both directions with particular stress:

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Who needs food?

Page views: 687 Dear diary, I had actually resolved to swear less. And what kind of ideas do I come up with? Yeah, I'm creating a new category called „excitement“. Now that's what I call failing with a bang. But I also have topics on the table all the time that you can only shake your head at. The fact that I have to deal with...

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Lateral position left

Page views: 712 The most important thing: my head and neck have to be fully supported by my three pillows. My neck muscles are too weak to support my neck on their own. If my neck is not properly supported, I wake up with a sore ear after a short time. This is because the entire weight of my thick skull rests on this one ear. That's actually...

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Physio Exercise 2: Underarm Decompression

Page views: 684 With the first exercise we have already relieved the affected nerve in the shoulder and back area. The next exercise is aimed more at the neck. Both exercises together bring about a considerable improvement. Ten minutes in the morning is often enough to get me through the day without pain. Firstly, bend my right arm. With...

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Physio Exercise 1: Pull out the shoulder blade

Pageviews: 665 My exercises are aimed at calming the stressed nerve, which presumably originates somewhere in the spine, runs behind the shoulder blades to the armpits and then extends through the arm to the tip of the thumb. That was probably completely anatomically incorrect, but hey, I'm neither a biologist nor a doctor. I'm not writing a textbook here, I'm just saying....

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Pain, let go.

Page views: 615 Dear diary, it wasn't long ago that I wrote something about how little pain I generally feel. Or at least I don't let it show. However, there were one or two things I failed to mention. In my last post on the subject of pain, I only touched on acute, or if you want to call it that, spontaneous pain...

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Put legs up

Page views: 866 In the meantime, my physio is pretty much the only time my legs are mobilised. That's not enough. And you can tell. I'm losing my mobility, my muscles are atrophying due to illness anyway, the ligaments and tendons or whatever it is are shortening so much that I can no longer put my heels up to my bum....

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