Page views: 636 Phew! Dear diary, can I even put you through this? But if not you, then who? I've been trying to meet someone in charge for weeks. PDL, GF, someone who has something to say. We've made several appointments over the past few weeks. But without exception, all of them were cancelled by the management. Most recently, I received two new appointment proposals,...
Page views: 648 Dear diary, am I doing something wrong? So probably yes, it can't be normal. But then what am I doing wrong? Or do other patients have similar problems? I don't think so, that would be tragic to the power of ten. The bleeding has stopped. The panic still has a firm grip on me. 3 Tavor Expedit and 10 drops of morphine directly under the...
Seitenaufrufe: 645 Liebstes Tagebuch, du glaubst es nicht. Mein Pfleger war schon am Tasche packen. Krankenhaus. Aufgrund von Zahnfleischblutens? Alter! Mittelmäßig begeistert ist er von der Idee, heute noch in die Münchner Innenstadt zu fahren. Hin im Krankenwagen, weil der bestellte Intensivtransport in bisher 0 % der Fälle kam. Stattdessen kommt ein einfacher Krantransport ohne Arzt und die Helfer...
Pageviews: 868 Good morning dear diary, the world has once again decided to fuck me. Unfucking unbelievable. As if all the crap from pressure sores to shortness of breath to €7,000 claims against me from my own care service weren't enough, let's go one better. Let's not only bleed Patrick's bank account, but also his gums. As announced, I will inform a...
Page views: 683 Dear diary, I'm not allowed to. Somehow the universe seems to have something against the plagued ALS patient getting a good night's sleep. The night was good. Well, let's say it was okay. Once again, I didn't get to bed until 2.30am. I don't know why that happens to me so often. It runs in the family...
Pageviews: 742 Dear diary, I can say with full conviction that I would love to have a totally boring day. One where so little happens that even sleeping and YouTube are too boring for me. Even though I love to sleep. Just to grumble again in bad old fashion: why am I so often criticised for...
Page views: 715 Dear diary, my day today is starting just as shitty as yesterday ended. Just like I used to like my steak before I turned to the dark side of the Force and went vegan. Bloody. I deliberately say vegan living. Not eating a vegan diet. For me, vegan doesn't mean militantly not eating any animal products...
Seitenaufrufe: 677 Dieser Artikel ist Teil einer Beitragsreihe. Ich nahm an, den Gipfel der Idiotie erreicht zu haben als man mir sagte, man bräuchte keine sterilen Handschuhe beim Legen des Blasenkatheters. Und dann hatte ich auf wundersame Weise einen Keim da unten. Der sei aus dem Krankenhaus und erst jetzt bemerkt worden, war die These. Hm, aber am Schwanz...
Page views: 630 This article is part of a series of articles. Besides all this wishful thinking about what a cannula could do better, there's another question that needs to be answered. How am I supposed to call for help? At the moment, I simulate a leakage with my jaw and lips and trigger an alarm. That's over as soon as a cannula...
Page views: 661 This article is part of a series of articles. I still have two arguments in favour of a tracheostomy tube. So take a quick breath and continue with the text. With very few exceptions, it always comes back to the same question. And it is not, as I thought, what advantages I would have from the cannula. A better question is...
