amyotrophelateralsklerose

For my birthday I wish...

Seitenaufrufe: 1,031 Na, das is doch ne Idee. Bevor mich noch jemand fragt, was man mir schenken kann… Und damit das Ganze auch einen gewissen Reiz hat, verspreche ich, den Spendentopf am Ende voll zu machen. Also los, spendet mal fleißig oder wollt ihr mich arm machen? Ist auch für eine gute Sache. Link zu meiner Spendenaktion: https://www.facebook.com/donate/774410683618091/

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Of course you visit me

Page views: 1,364 This question is very popular. Am I allowed to visit you or are you uncomfortable? In itself, the question is understandable. But hey, I don't necessarily look like that, but I'm still the same complete idiot I used to be. Nothing has changed about the fact that I like company and can get anyone into bed. And let's see...

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I told you so

Page views: 1,256 To quote Sheldon, under normal circumstances I'd say I told you so. But, as I have told you so with such vehemence and frequency already the phrase has lost all meaning. Therefore, I will be replacing it with the phrase, I have informed you thusly. For arse. I'm fucked. Or am I screwed...

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If I don't do everything myself

Page views: 1,247 Prepared article, deliberately not up to date. I could have published this article a few days or weeks ago and deliberately decided against it to rule out any possible conclusions about the carers on duty at the time. I will clarify this with the QM and QB of the nursing service, but certainly not here. But the background is necessary for the story, otherwise...

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VaporMed Volcano Medic 2 (inhalation, hot)

Page views: 1,406 One of my favourite topics. Yes, I smoke pot. And on prescription with free home delivery from my pharmacy. What sounds like every stoner's dream actually has a sound medical background. Before this form of therapy, I was plagued by incessant fasciculations (muscle twitches) all over my body, especially in my extremities, stomach and shoulders. At night they were joined by at least...

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Removing the nose mask

Seitenaufrufe: 1,006 Achtung! Die Anleitung des Herstellers beschreibt nur die grundsätzliche Vorgehensweise für Patienten, die die Beatmung zur Unterstützung benötigen und noch selbständig atmen können während die Maske gewechselt wird. Da die Maske in meinem Fall lebenserhaltend notwendig ist, müssen wir bei mir beispielsweise den Schlauch viel früher wieder anschließen und meine Beatmungsmaschine wird auch niemals ausgeschaltet. Die hier...

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Putting on the nose mask

Page views: 1,135 Attention! The manufacturer's instructions only describe the basic procedure for patients who require ventilation for support and can still breathe independently while the mask is being changed. Since the mask is necessary for life support in my case, for example, we have to reconnect the tube much earlier and my ventilator is never switched off. This one...

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Description of the individual parts of the nose mask

Seitenaufrufe: 1,023 Wie bei allen zitierten Herstelleranleitungen werde ich auch hier beizeiten um Erlaubnis bitten, bedanke mich aber schon im Vorfeld dafür. Die Nasenmaske kann zum Reinigen auseinandergebaut werden (siehe Abschnitt „Auseinanderbau“). Wenn der Schlauch straff gespannt ist – was nie so sein soll, aber täglich passiert – dann fällt die Nasenmaske aber auch schon mal im aufgesetzten Zustand...

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ResMed AirFit N20 Classic Nasal Mask

Page views: 1,059 I wear the nose mask during the day. It makes me feel safe and allows me to communicate at least partially orally. In addition to allowing me to eat and drink, the nasal mask has another decisive advantage over the nose-mouth mask. By opening my mouth and palate, I can build up a positive pressure in my throat, which I can use to...

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