amyotrophiclateralsclerosis

Volcano: Cleaning (after each use)

Pageviews: 636 Once the capsule carrier has cooled down a little, twist the two parts apart again. Use the small wooden brush to remove the residue from the tube holder. Also use the small brush to remove all residue from the capsule holder. Then empty the capsule (residual waste). Finally, brush out the inside of the heating chamber.

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Ella bella? Assolutamente no.

Page views: 824 Dear diary, if I worked like this. I'd have no more customers and would have been broke long ago. I would be ashamed of myself. I think that surprisingly often when it comes to suppliers and manufacturers of medical aids. I fully understand that the high costs of such products and services are not entirely out of the question.

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Smoking (Actually inhalation)

Page views: 714 My English tea-in-bed rice tray has proved its worth for smoking. The vaporiser stands stably and securely on it when you put it in bed with me to smoke. To be able to smoke, we need the vaporiser, the filled capsule holder and the tube with mouthpiece. The capsule holder is carefully screwed onto the vaporiser. Do not screw it too tightly, otherwise it will break...

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Volcano: Preparation (fill with capsule)

Page views: 589 The first thing we need is a fresh capsule of cannabis. You can find them on the cooking island in the kitchen. I get the capsules pre-filled from the pharmacy. Because grinding the cannabis and filling the capsules is quite labour-intensive manual work, delivery sometimes takes two weeks. Please bear this in mind and let me know in good time if I need to reorder...

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WiLAmed AIRniva (respiratory gas humidifier)

Pageviews: 805 I have a very big request on the subject of topping up the water in the humidifier. I emphasise this so clearly because I hope you will be the first to comply with my request. Special request: fill to at least 50% The humidifier must always, at all times, without exception, be filled to at least 50% with water. If there is less water in the humidifier, this...

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ResMed Astral 100 (ventilation)

Seitenaufrufe: 973 Die Geräteeinweisung muss aus rechtlichen Gründen durch meinen Versorger (Vivisol, Kontaktdaten siehe Kapitel „Wichtige Kontakte“) erfolgen. Da meine Beatmung nie ausgeschaltet wird und ich nur ein einziges Beatmungsprofil verwende, muss man dazu aber auch erst einmal nicht allzu viel wissen. Meine Geräte Ich verfüge über zwei baugleiche, identische Astral 100. Die Notfall-Maschine ist stets mit separatem Schlauch...

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The Koschten.

Seitenaufrufe: 736 Liebes Tagebuch, waren mal wieder ziemlich viele Ausgaben für meine Pflege und Behandlungen in den letzten Wochen. Gefühlt flattern hier fast täglich irgendwelche Zuzahlungsrechnungen ins Haus. Das stößt immer wieder auf Verwunderung bei meinen PflegerInnen und TherapeutInnen. Es scheint nicht viele ALS Patienten mit höchster Pflegestufe und 90% Schwerbehinderung zu geben, die nicht zuzahlungsbefreit sind. Aber genau...

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Fascination Fasciculation & Cannabis

Page views: 989 Moin, it's a thing with the radio. Pretty much everything is repeated all the time. People are only too happy to claim that there are so many good musical, factual or other editorial alternatives that could be broadcast. Of course there could be, but every station that does this has failed to reach the masses...

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Upwind.

Page views: 623 Dear diary, a few turbulent days lie behind us. Between Easter week, a family visit and a panic attack, my carer has lost touch with reality and, as a result, two new carers have spontaneously started work. The first one yesterday in the late evening - some would call it „night“ if you don't finish until 1.00 am -...

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The storm before the calm.

Page views: 671 Dear diary, But something always has to happen first. Why do I, as the customer that I am at the end of the day, have to show complete apathy for the seriousness of the situation to be recognised? Dogs that bark don't bite. So they say. Anyone who knows me knows that I like to defend my opinion with arguments. Especially when...

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