Page views: 656 Phew! Dear diary, can I even put you through this? But if not you, then who? I've been trying to meet someone in charge for weeks. PDL, GF, someone who has something to say. We've also made several appointments over the past few weeks. But without exception, all of them were cancelled by the management. Most recently, I received two new appointment proposals,...
Page views: 677 Dear diary, am I doing something wrong? So probably yes, it can't be normal. But then what am I doing wrong? Or do other patients have similar problems? I don't think so, that would be tragic to the power of ten. The bleeding has stopped. The panic still has a firm grip on me. 3 Tavor Expedit and 10 drops of morphine directly under the...
Page views: 664 Dearest diary, you won't believe it. My carer was already packing my bag. Hospital. Because of bleeding gums? Dude! He's moderately enthusiastic about the idea of going to Munich city centre today. There in the ambulance, because the intensive care transport that was ordered has come in 0 % of the cases so far. Instead, a simple crane transport arrives without a doctor and the helpers...
Pageviews: 888 Good morning dear diary, the world has once again decided to fuck me. Unfucking unbelievable. As if all the crap from pressure sores to shortness of breath to €7,000 claims against me from my own care service weren't enough, let's go one better. Let's not only bleed Patrick's bank account, but also his gums. As announced, I will inform a...
Page views: 716 Dear diary, I'm not allowed to. Somehow the universe seems to have something against the plagued ALS patient getting a good night's sleep. The night was good. Well, let's say it was okay. Once again, I didn't get to bed until 2.30am. I don't know why that happens to me so often. It runs in the family...
Pageviews: 766 Dear diary, I can say with full conviction that I would love to have a totally boring day. One where so little happens that even sleeping and YouTube are too boring for me. Even though I love to sleep. Just to grumble again in bad old fashion: why am I so often criticised for...
Pageviews: 694 This article is part of a series. I thought I had reached the pinnacle of idiocy when I was told that I didn't need sterile gloves to insert a urinary catheter. And then, miraculously, I had a germ down there. The theory was that it had come from the hospital and had only just been noticed. Hm, but on the tail...
Page views: 646 This article is part of a series of articles. Besides all this wishful thinking about what a cannula could do better, there's another question that needs to be answered. How am I supposed to call for help? At the moment, I simulate a leakage with my jaw and lips and trigger an alarm. That's over as soon as a cannula...
Seitenaufrufe: 690 Dieser Artikel ist Teil einer Beitragsreihe. Zwei Argumente, die für eine Trachealkanüle sprechen könnten, habe ich noch. Also kurz Luft holen und weiter im Text. Mit ganz vereinzelten Ausnahmen läuft es also immer wieder auf die gleiche Fragestellung hinaus. Und die lautet nicht, wie ich dachte, welche Vorteile ich von der Kanüle hätte. Eine bessere Fragestellung ist,...
Page views: 712 This article is part of a series of posts. I have given a lot of things serious thought over the last few days. I mean specifically on the subject of tracheostomy tubes. I think about something all the time. If I don't do anything, something burns out. I can do „nothing“ in the sense of consciously listening to music, consciously dozing...
