amyotrophiclateralsclerosis

Of course you visit me

Seitenaufrufe: 1,382 Diese Frage steht ganz hoch im Kurs. Darf ich dich besuchen oder ist dir das unangenehm? An sich verständlich, die Frage. Aber hey, ich sehe zwar nicht unbedingt so aus, aber ich bin noch immer derselbe Vollpfosten wie früher. Es hat sich nichts daran geändert, dass ich auf Gesellschaft stehe und jede(n) ins Bett kriege. Und mal...

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I told you so

Seitenaufrufe: 1,276 Um Sheldon zu zitieren, under normal circumstances I’d say I told you so. But, as I have told you so with such vehemence and frequency already the phrase has lost all meaning. Therefore, I will be replacing it with the phrase, I have informed you thusly. Fürn Arsch. Ich bin am Arsch. Oder bin ich am End...

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If I don't do everything myself

Page views: 1,263 Prepared article, deliberately not up to date. I could have published this article a few days or weeks ago and deliberately decided against it in order to rule out any possible conclusions about the carers on duty at the time. I will clarify this with the QM and QB of the nursing service, but certainly not here. But the background is necessary for the story, otherwise...

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VaporMed Volcano Medic 2 (inhalation, hot)

Pageviews: 1,435 One of my favourite topics. Yes, I smoke pot. And on prescription with free home delivery from my pharmacy. What sounds like every stoner's dream actually has a sound medical background. Before this form of therapy, I was plagued by incessant fasciculations (muscle twitches) all over my body, especially in my extremities, stomach and shoulders. At night they were joined by at least...

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Removing the nose mask

Page views: 1,015 Attention! The manufacturer's instructions only describe the basic procedure for patients who require ventilation for support and can still breathe independently while the mask is being changed. In my case, for example, since the mask is necessary for life support, we have to reconnect the tube much earlier and my ventilator is never switched off. This one...

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Putting on the nose mask

Seitenaufrufe: 1,162 Achtung! Die Anleitung des Herstellers beschreibt nur die grundsätzliche Vorgehensweise für Patienten, die die Beatmung zur Unterstützung benötigen und noch selbständig atmen können, während die Maske gewechselt wird. Da die Maske in meinem Fall lebenserhaltend notwendig ist, müssen wir bei mir beispielsweise den Schlauch viel früher wieder anschließen und meine Beatmungsmaschine wird auch niemals ausgeschaltet. Die hier...

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Description of the individual parts of the nose mask

Page views: 1,043 As with all manufacturer instructions quoted, I will ask for permission in good time, but I would like to thank you in advance. The nose mask can be disassembled for cleaning (see section „Disassembly“). If the hose is stretched tight - which should never be the case, but happens every day - the nose mask can sometimes fall when it is put on...

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ResMed AirFit N20 Classic Nasal Mask

Page views: 1,074 I wear the nose mask during the day. It makes me feel safe and allows me to communicate at least partially orally. In addition to allowing me to eat and drink, the nose mask has another decisive advantage over the nose-mouth mask. By opening my mouth and palate, I can build up positive pressure in my throat, which I can use to...

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Lose weight

Seitenaufrufe: 1,198 Wenn du Tipps zum Abnehmen brauchst, da habe ich ein paar auf Lager. Mit ALS geht das noch konsequenter als mit den 25 km, die ich vor einiger Zeit noch in 2:35 gelaufen bin. Wie das Abnehmen der Maske funktioniert, erkläre ich im Punkt „Maskenwechsel“.

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