Page views: 510 aka ventilator weaning for ALS My personal highlight of the otherwise less amusing second half of the week, i.e. last week: a letter from the medical service to my care service. There are new forms again and the old ones no longer work. This is the second time since my illness began. But you can really make life difficult for yourself. That...
This week I have been very preoccupied by a sentence that I have heard for the third time now from nurses. "I really don't care what happens to the earth after me.
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Page views: 466 (aka medication chaos) So I really have to get one thing off my chest. Yes, documentation is a bottomless pit. Wanting to update existing documentation is a Pandora's box. But my arse. I'd rather have no documentation at all than what they've been working on - or at least what they've been working with - since last year. It...
And so, as is often the case, a message is sent to the management. And bombshell it was. It woke up a few people there and sent them into a frenzy. The very next morning, the whole baggage of my nursing service was there without any agreement. Management, quality management, team leaders. And nurses, of course. And my parents, who were visiting.
That could have backfired badly. We were lucky in our misfortune. Does someone have to die for something to - maybe - happen? My doctor is convinced that I should have been fever-free two days earlier.
Page views: 524 This is roughly what it looks like when I say the screenshot is self-explanatory. Here, for example, is an email that caused my doctor a lot of incomprehension and resigned head-shaking in the second half of the week. As funny as this may sound ex post, we're still talking about two days of unnecessary fever. And this is what my message looked like:...
Pageviews: 492 (aka „His 1st words“) As is all too often the case, the weekend has arrived and I haven't managed to write a single post. Let alone click on „publish“. I've been further away from that than ever before. And I can tell you, it's not for lack of conversation. Have a look...
Discussion with a carer about whether it is really a nail fold infection, as my doctor claims. She is of a different opinion. If she has her way, I'll have to get a new chiropodist straight away. Guys, she's getting on my nerves.
What kind of week was that again? Hardly a night without trouble. Last night? It was okay, I think. I'm about to file what happened under „unimportant, forget it“. That's how I started writing my text. Yesterday. Today? I'd have to revise that. After four hours of sleep, I had to be vacuumed badly. Reason follows. After all, I said that...
