DasIstALS

I say bluntly what I think, sometimes through the nose, but always honestly. If you don't want to hear the answer, don't ask me.

I must be the only person on this planet who can mentally bridge the gap between a urinary catheter and his preference for serial polygamy.

How many hours do you think I work in a tightly scheduled 12-hour shift?

I always find it fascinating how nurses make statements about my state of health over my head.

Hang digital picture frames everywhere in the flat and on the smoker's balcony and in the guest WC that show live what needs to be done.

Seitenaufrufe: 525 Da war doch was, lass mal nachdenken. Stimmt. Das war gestern. Nicht, dass ich es vergessen hätte. Oder davon ausgegangen wäre, dass man mich dieses Mel nicht vergessen würde. Über die Gründe dafür möchte ich keine Thesen in den Raum stellen, das wäre unnötiger Energieaufwand. Ich sage ja auch nur, dass ich das schon vorher allen gesagt...

Page views: 513 aka ventilator weaning for ALS My personal highlight of the otherwise less amusing second half of the week, i.e. last week: a letter from the medical service to my care service. There are new forms again and the old ones no longer work. This is the second time since my illness began. But you can really make life difficult for yourself. That...

This week I have been very preoccupied by a sentence that I have heard for the third time now from nurses. "I really don't care what happens to the earth after me.

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Seitenaufrufe: 477 (aka Medikamentenchaos) Also eine Sache muss ich ja echt mal loswerden. Ja, Dokumentation ist ein Fass ohne Boden. Eine vorhandene Dokumentation auf Vordermann bringen zu Wollen die Büchse der Pandora. Aber meine Fresse. Da habe ich ja noch lieber gar keine Doku als das, wonach – oder zumindest womit – hier seit letztem Jahr gearbeitet wird. Es...