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Page views: 751 Dear diary, it's actually an irony of fate. I never used to have a problem drinking two bottles of water between 15 gin and tonics when doing sport or partying, for example. Or at the Oktoberfest. When I remember that I used to drink ten litres in the best of times, that's unthinkable today. Today that would be...
The time has come for me to feel the need to do some educational work on ALS. Not in the sense of hard facts.
It was less than a week ago that I had a mask put on at night with half of it missing. Tales follow about parts that must have fallen under the bed.
Page views: 881 Nothing but stress and anger And there it was, the PEG. Secretly, quietly and silently. Kaboom. To be honest, it was planned a little differently, my reporting. I hadn't intended to wait over three months to do it. But it wasn't planned that I would have a lot of problems during the first eight weeks with the...
Pageviews: 916 This is the much-publicised sexy photo love story of my masks and me. We start with the change from nose mask to nose-mouth mask. Here's what happens: Good preparation is half the battle. Prepare the nose-mouth mask. Open the lower magnetic fasteners on the lower straps. Make sure that the upper straps are correctly inserted into their respective holders and are not...
Seitenaufrufe: 990 Ja, du liest völlig richtig. Noch ein copy & paste Masken Tutorial. Ein Mitarbeiter meines Pflegedienstes hätte möglicherweise eine Abmahnung vermeiden können, hätte er sich die Maske mal angeschaut, bevor er sie wieder und wieder und nochmal wieder falsch herum zusammengebaut aufzusetzen versuchte. Was für den Normalsterblichen logisch ist, das ist für einen ausgebildeten Intensivpfleger mit Expertenfortbildung...
Page views: 957 Once again you ask yourself, is this necessary? Yet another copy & paste from a user manual? Seriously? Yes, I'm completely serious. I kicked the last carer who tried to put a mask on me the wrong way round in agony out of my team. And he received a warning from his employer. There were still...
Page views: 955 An agonising hour of pointless attempts to explain how to put the mask on correctly... and therefore a cold coffee with disgusting-tasting medication later. 30-day countdown for „Patrick has a PEG inserted“ set to zero yesterday. If the carer had read my instructions instead of making me explain the same shit every time I sat down like some infatuated teenager... he would have...
Seitenaufrufe: 1,014 Na, das is doch ne Idee. Bevor mich noch jemand fragt, was man mir schenken kann… Und damit das Ganze auch einen gewissen Reiz hat, verspreche ich, den Spendentopf am Ende voll zu machen. Also los, spendet mal fleißig oder wollt ihr mich arm machen? Ist auch für eine gute Sache. Link zu meiner Spendenaktion: https://www.facebook.com/donate/774410683618091/
