Balance from Day One
Seitenaufrufe: 1,213 Bilanz des heutigen ersten Tages meines Augustes des Schreckens: und nicht ein einziges Mal musste ich darum bitten. Nichts ist für die Ewigkeit, aber der Start ist ordentlich.
KennstDuALS
Care contract
Page views: 949 Treasures, it's time to celebrate for now. New care contract signed and sealed. An incredibly big thank you to everyone who I can't list individually. You know how happy I am that you exist.
August of Terror is covered
Seitenaufrufe: 1,034 Nun ist es schon Donnerstag, die Zeit rennt und nun ja, es sieht bei mir alles so aus, als würde es mit meinem neuen Pflegedienst funktionieren. Es waren schon mehrere Mitarbeiter zur Einarbeitung hier. Die zwei Jungs gestern machten einen ruhigen, aber motivierten und professionellen Eindruck. Der Kollege heute war auch klasse. Abgesehen von seiner mit mir...
Supplementary budget Cigarette No. 1
Page impressions: 1,137 Supplementary budget for yesterday: all sorts of different types and flavours of tobacco from e-cigarettes stuffed into empty capsules of the Kiffomat 3.000 (better known to health insurance companies as Vapormed Volcano MEDIC 2 and if you ask me, it's a Storz & Bickl Volcano Hybrid) in a painstaking and delicate manual process. Huge thanks to Geli and Erik. So can...
The principle of hope
Pageviews: 1,120 Some people are beating their hands over their heads at my serenity coupled with deep black humour. But what's the point of stressing yourself out? Nothing. It could be worse. Besides, there is hope that there is hope. At least I hope so. At the moment, however, it all looks as if my puzzle will come together after all...
Somehow it will work out
Page views: 1,009 It's time for a little update. I'm doing great with the eye control, but it's no comparison to my usual 500 keystrokes per minute. As I reply personally to everyone who writes to me, it takes time and I have still been able to reply to all messages. Sorry for that. Rest assured I am grateful for any tips and...
My care service fucked up
Pageviews: 1,077 Spoiler: Better sit down before you read on. When you've recovered from the initial shock, share my post, tag anyone who can help me, comment and join in the discussion... My name is Patrick, I'm 42 years old, I was diagnosed with ALS five years ago and still claim to be living life to the full and enjoying it....