lifelessons

The thing about the thing

Pageviews: 829 Part 3 of 3 Shitting has to be learnt. New day, new luck. Have you digested yesterday's post yet? Well, I'm only moderately so. To be honest, my enthusiasm for writing about my ridiculous Pippifax problems has not yet returned. But this should be the shortest part by far. If you missed the first two, you can find them here...

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The thing about the thing

Pageviews: 766 Part 2 of 3 Problems that mean the world. Can. But definitely do when they do. We were in trouble. And I'm starting an extra post for that? Actually, yes. Over the last few weeks, months and years, I have repeatedly experienced the lack of understanding about my ALS disease. Especially when it comes to medical...

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Inventory Olé

Seitenaufrufe: 738 Liebes Tagebuch, es kam, wie es kommen musste. Wie es immer kommt, wenn ich versuche, meinen Mitmenschen die Zeit bei mir zu versüßen. Meine Großzügigkeit wird gnadenlos ausgenutzt. Vermutlich nicht einmal absichtlich und böswillig sowieso nicht. Aber am Ergebnis ändert das nichts. Tagelang beschäftigen tut das mein Hirn. Mein Puls rast, statt 60-70 in Ruhe kann ich...

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The €7,000 PEG

Page views: 856 Nothing but stress and anger And there it was, the PEG. Secretly, quietly and silently. Kaboom. To be honest, it was planned a little differently, my reporting. I hadn't intended to wait over three months to do it. But it wasn't planned that I would have a lot of problems for the first eight weeks due to the...

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The Long Night-Day-Day-Night

Seitenaufrufe: 1,291 Was ein Wochenende. Da habe ich glatt ein paar Tage gebraucht, um wieder unter die lebenden zu kommen. Dabei war das doch überhaupt keine riesige Party, so gesehen. Nicht einmal zehn Personen waren wir. Also zumindest nicht zeitgleich. So viel steht fest. Dafür gingen die Feierlichkeiten umso länger. Von Freitagabend bis Montag früh, wenn man so will....

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Of course you visit me

Page views: 1,309 This question is very popular. Can I visit you or are you uncomfortable? In itself, the question is understandable. But hey, I don't necessarily look like that, but I'm still the same complete idiot I used to be. Nothing has changed about the fact that I like company and can get anyone into bed. And let's see...

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Acknowledgement

Pageviews: 1,056 Awesome shit. You'd think there was nothing going on in my life. And yet I'm plagued by the little bit of conscience I still have. I haven't answered so many messages, or at least not properly. So many lovely people who shared my original post (and there were hundreds of them in the first few hours alone)...

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Supplementary budget Cigarette No. 1

Page impressions: 1,096 Supplementary budget for yesterday: all kinds of different varieties and flavours of tobacco from e-cigarettes stuffed into empty capsules of the Kiffomat 3.000 (better known among health insurance companies as Vapormed Volcano MEDIC 2 and if you ask me, it's a Storz & Bickl Volcano Hybrid) in a painstaking and delicate manual process. Huge thanks to Geli and Erik. So can...

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My care service fucked up

Pageviews: 1,019 Spoiler: Better sit down before you read on. When you've recovered from the initial shock, share my post, tag anyone who can help me, comment and join in the discussion... My name is Patrick, I'm 42 years old, I was diagnosed with ALS five years ago and still claim to be living life to the full and enjoying it....

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