lifelessons

The thing about the thing

Seitenaufrufe: 862 Teil 3 von 3 Scheißen will gelernt sein. Neuer Tag, neues Glück. Meinen gestrigen Beitrag schon verdaut? Also, ich nur so mittel. Da ist mein Elan, über meine so lächerlichen Pippifax-Problemchen schreiben ehrlich gesagt noch nicht zurück. Dabei dürfte das hier der um Längen kürzeste Teil werden. Falls du die ersten zwei verpasst hast, die findest du...

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The thing about the thing

Pageviews: 796 Part 2 of 3 Problems that mean the world. Can. But definitely do when they do. We were in trouble. And I'm starting an extra post for that? Actually, yes. Over the last few weeks, months and years, I have repeatedly experienced the lack of understanding about my ALS disease. Especially when it comes to medical...

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Inventory Olé

Seitenaufrufe: 783 Liebes Tagebuch, es kam, wie es kommen musste. Wie es immer kommt, wenn ich versuche, meinen Mitmenschen die Zeit bei mir zu versüßen. Meine Großzügigkeit wird gnadenlos ausgenutzt. Vermutlich nicht einmal absichtlich und böswillig sowieso nicht. Aber am Ergebnis ändert das nichts. Tagelang beschäftigen tut das mein Hirn. Mein Puls rast, statt 60-70 in Ruhe kann ich...

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The €7,000 PEG

Page views: 881 Nothing but stress and anger And there it was, the PEG. Secretly, quietly and silently. Kaboom. To be honest, it was planned a little differently, my reporting. I hadn't intended to wait over three months to do it. But it wasn't planned that I would have a lot of problems during the first eight weeks with the...

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The Long Night-Day-Day-Night

Seitenaufrufe: 1,313 Was ein Wochenende. Da habe ich glatt ein paar Tage gebraucht, um wieder unter die lebenden zu kommen. Dabei war das doch überhaupt keine riesige Party, so gesehen. Nicht einmal zehn Personen waren wir. Also zumindest nicht zeitgleich. So viel steht fest. Dafür gingen die Feierlichkeiten umso länger. Von Freitagabend bis Montag früh, wenn man so will....

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Of course you visit me

Page views: 1,347 This question is very popular. Am I allowed to visit you or are you uncomfortable? In itself, the question is understandable. But hey, I don't necessarily look like that, but I'm still the same complete idiot I used to be. Nothing has changed about the fact that I like company and can get anyone into bed. And let's see...

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Acknowledgement

Pageviews: 1,096 Awesome shit. You'd think there was nothing going on in my life. And yet I'm plagued by the little bit of conscience I still have. I haven't answered so many messages, or at least not properly. So many lovely people who shared my original post (and there were hundreds of them in the first few hours alone)...

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Supplementary budget Cigarette No. 1

Page impressions: 1,125 Supplementary budget for yesterday: all kinds of different varieties and flavours of tobacco from e-cigarettes stuffed into empty capsules of the Kiffomat 3.000 (better known to health insurance companies as Vapormed Volcano MEDIC 2 and if you ask me, it's a Storz & Bickl Volcano Hybrid) in a painstaking and delicate manual process. Huge thanks to Geli and Erik. So can...

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My care service fucked up

Pageviews: 1,066 Spoiler: Better sit down before you read on. When you've recovered from the initial shock, share my post, tag anyone who can help me, comment and join the discussion... My name is Patrick, I'm 42 years old, I was diagnosed with ALS five years ago and still claim to be living life to the full and enjoying it....

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