seltenekrankheiten

Morning pint Vodka Bull

Page views: 663 Dearest diary, you won't believe it. My carer was already packing my bag. Hospital. Because of bleeding gums? Dude! He's moderately enthusiastic about the idea of going to Munich city centre today. There in the ambulance, because the intensive care transport that was ordered has come in 0 % of the cases so far. Instead, a simple crane transport arrives without a doctor and the helpers...

Read More

Local anaesthetic? My ass.

Pageviews: 888 Good morning dear diary, the world has once again decided to fuck me. Unfucking unbelievable. As if all the crap from pressure sores to shortness of breath to €7,000 claims against me from my own care service weren't enough, let's go one better. Let's not only bleed Patrick's bank account, but also his gums. As announced, I will inform a...

Read More

F**k you, Tobii. You donkey.

Seitenaufrufe: 716 Liebes Tagebuch, es ist mir nicht vergönnt. Irgendwie scheint das Universum etwas dagegen zu haben, dass der geplagte ALS Patient mal ausschlafen kann. Die Nacht war gut. Naja, sagen wir, sie war okay. Ich bin wieder einmal erst um 2:30 Uhr ins Bett gekommen. Weiß auch nicht, warum mir das so oft passiert. Liegt in der Familie...

Read More

Medium Rare is for wimps.

Pageviews: 766 Dear diary, I can say with full conviction that I would love to have a totally boring day. One where so little happens that even sleeping and YouTube are too boring for me. Even though I love to sleep. Just to grumble again in bad old fashion: why am I so often criticised for...

Read More

Count Patricula

Pageviews: 728 Dear diary, my day today is starting just as shitty as yesterday ended. Just like I used to like my steak before I turned to the dark side of the force and went vegan. Bloody. I deliberately say vegan living. Not eating a vegan diet. For me, vegan doesn't mean militantly not eating any animal products...

Read More

For heaven's sake.

Pageviews: 694 This article is part of a series. I thought I had reached the pinnacle of idiocy when I was told that I didn't need sterile gloves to insert a urinary catheter. And then, miraculously, I had a germ down there. The theory was that it had come from the hospital and had only just been noticed. Hm, but on the tail...

Read More

Alarm! Exclamation mark.

Page views: 646 This article is part of a series of articles. Besides all this wishful thinking about what a cannula could do better, there's another question that needs to be answered. How am I supposed to call for help? At the moment, I simulate a leakage with my jaw and lips and trigger an alarm. That's over as soon as a cannula...

Read More

Crooked and crooked.

Page views: 689 This article is part of a series of articles. I still have two arguments in favour of a tracheostomy tube. So take a quick breath and continue with the text. With very few exceptions, it always comes back to the same question. And it is not, as I thought, what advantages I would have from the cannula. A better question is...

Read More

O'zapft is.

Page views: 712 This article is part of a series of posts. I have given a lot of things serious thought over the last few days. I mean specifically on the subject of tracheostomy tubes. I think about something all the time. If I don't do anything, something burns out. I can do „nothing“ in the sense of consciously listening to music, consciously dozing...

Read More

Start typing and press Enter to search