seltenekrankheiten

"The new one" who was left by me before she even really started working here. Which is not to say I didn't give her the chance.

This week I have been very preoccupied by a sentence that I have heard for the third time now from nurses. "I really don't care what happens to the earth after me.

I must be the only person on this planet who can mentally bridge the gap between a urinary catheter and his preference for serial polygamy.

I always find it fascinating how nurses make statements about my state of health over my head.

Hang digital picture frames everywhere in the flat and on the smoker's balcony and in the guest WC that show live what needs to be done.

Page views: 516 There was something, let me think. That's right. That was yesterday. Not that I'd forgotten. Or assumed that I wouldn't be forgotten this Mel. I don't want to hypothesise about the reasons for this, that would be an unnecessary waste of energy. I'm just saying that I've already told everyone that...

Page views: 510 aka ventilator weaning for ALS My personal highlight of the otherwise less amusing second half of the week, i.e. last week: a letter from the medical service to my care service. There are new forms again and the old ones no longer work. This is the second time since my illness began. But you can really make life difficult for yourself. That...

This week I have been very preoccupied by a sentence that I have heard for the third time now from nurses. "I really don't care what happens to the earth after me.

Page views: 466 (aka medication chaos) So I really have to get one thing off my chest. Yes, documentation is a bottomless pit. Wanting to update existing documentation is a Pandora's box. But my arse. I'd rather have no documentation at all than what they've been working on - or at least what they've been working with - since last year. It...

And so, as is often the case, a message is sent to the management. And bombshell it was. It woke up a few people there and sent them into a frenzy. The very next morning, the whole baggage of my nursing service was there without any agreement. Management, quality management, team leaders. And nurses, of course. And my parents, who were visiting.