seltenekrankheiten

aka ventilator weaning for ALS My personal highlight of the otherwise less funny second half of the week, i.e. last week: a letter from the...

I was very concerned this week about a sentence that I've heard from carers for the third time now...

(aka medication chaos) So I really have to get one thing off my chest. Yes, documentation is a bottomless pit. One...

And so, as is so often the case, a message is sent to the management. And bombshell, it worked. She was there...

That could have backfired badly. We were lucky in misfortune. Does someone have to die before -...

This is roughly what it looks like when I say the screenshot is self-explanatory. Here, for example, we have an email that...

Discussion with a carer about whether it is really a nail fold infection, as my doctor claims. She...

What kind of week was that again? Hardly a night without trouble. Last night? Was okay, I think....

Welcome to my world of a maximum of 3.5 hours of sleep. It's been like this for about two weeks now. Even in the presence of...

Dear diary, oh dear. This week is already off to a good start. If I don't publish anything on the weekend of all days, I'll have...