DasIstALS

How many hours do you think I work in a tightly scheduled 12-hour shift?

I always find it fascinating how nurses make statements about my state of health over my head.

Hang up digital picture frames everywhere in the flat and on the smoker's balcony and in the guest WC, which display live what is...

There was something, let's think about it. That's right. That was yesterday. Not that I've forgotten. Or about it...

aka ventilator weaning for ALS My personal highlight of the otherwise less funny second half of the week, i.e. last week: a letter from the...

I was very concerned this week about a sentence that I've heard from carers for the third time now...

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(aka medication chaos) So I really have to get one thing off my chest. Yes, documentation is a bottomless pit. One...

And so, as is so often the case, a message is sent to the management. And bombshell, it worked. She was there...

That could have backfired badly. We were lucky in misfortune. Does someone have to die before -...