Page views: 686 Dear diary, it's not your fault and you probably care about it about as much as when a sack of rice falls over in China. Or even less. In the same way that a Bayern game captivates me, perhaps? I'm just not interested in football. Never mind, we'll have to get through this together. What is it? Do I pull that...
Seitenaufrufe: 702 Liebes Tagebuch, also das ist jetzt wirklich mal eine coole Sache, die ich mit der tatkräftigen Unterstützung meiner Schwester endlich mal fertig einrichten konnte. Die Hardware ist ja schon ewig und drei Tage eingebaut und angeschlossen. Aber mit der Einrichtung der diversen nötigen Apps hat es sich bisher mehrfach als nicht so ganz einfach herausgestellt. Das jetzige...
Page views: 786 Dear diary, it came as it had to. As it always happens when I try to sweeten my fellow human beings' time with me. My generosity is mercilessly exploited. Probably not even intentionally and not maliciously anyway. But that doesn't change the result. It keeps my brain busy for days. My pulse races, instead of 60-70 at rest I can...
Page views: 757 Last time I tried to explain what changes occur to the nerves as a result of ALS. The bottom line is that I can hardly move anything any more - keyword tetraparesis - but I feel and sense everything as I always have. And also want to feel. My girlfriend gave me a „scratcher“ for my birthday, a telescopic stick fork scratcher...
Seitenaufrufe: 884 Heute habe ich zur Abwechslung mal kein Gemecker über meinen Pflegedienst und kein Gejammer. Ganz im Gegenteil. Heute ist mir ein Anliegen, wieder mal etwas aus dem realen Leben eines ALS Patienten zu erzählen. Etwas, das du in keinem Lehrbuch finden wirst. Warum niemand über solche Dinge schreibt? Gute Frage. Vermutlich weil es kein Geld einbringt und...
Seitenaufrufe: 660 Liebes Tagebuch, es gibt Dinge, die muss ich nicht verstehen. Würde ich aber gerne. In letzter Zeit denke ich notgedrungen viel über meine Pflege nach. Erwarte ich zu viel? Sind meine Ansprüche zu hoch? Wenn du mich nach meiner Meinung zum Pflegenotstand in Deutschland fragst bin ich hin und her gerissen. Einerseits bin ich überzeugt, dass der...
Pageviews: 689 Dear diary, I just can't seem to get it right. Just when you think you've had enough vomit this week... just when you think things are about to change for the better in your care... just when you're thinking about whether changing care provider might not be a wise decision after all... Then it's time for another hearty...
Page views: 664 Dear diary, help me. I don't want to have to lie in my nursing bed again and watch a trickle of blood run from my mouth into my pillow. After all the trouble and stress I've just had because of my bleeding gums, I've had enough for the next few weeks. I already have a toothbrush ban...
Page views: 719 Dear diary, I'm glad you're here. You understand me. If I disagreed with you in a factual discussion, you wouldn't insist on your opinion and harp on about it without questioning it. I would have forgotten something, I hear that several times a day. Although the balance 100% on „Patrick didn't forget anything, but carer made a mistake“...
Pageviews: 655 Dear Diary, To this day, I'm fascinated by the fact that at 43, I'm obviously already part of the age group we used to call „goths“ when I was a kid. Instagram is too much adverts and BS for me. When I talk about Facebook, my carers laugh at me. Who still has Facebook today. And yet another blog....
