Care & checkout

Hang digital picture frames everywhere in the flat and on the smoker's balcony and in the guest WC that show live what needs to be done.

Seitenaufrufe: 538 Da war doch was, lass mal nachdenken. Stimmt. Das war gestern. Nicht, dass ich es vergessen hätte. Oder davon ausgegangen wäre, dass man mich dieses Mel nicht vergessen würde. Über die Gründe dafür möchte ich keine Thesen in den Raum stellen, das wäre unnötiger Energieaufwand. Ich sage ja auch nur, dass ich das schon vorher allen gesagt...

Page views: 514 aka ventilator weaning for ALS My personal highlight of the otherwise less amusing second half of the week, i.e. last week: a letter from the medical service to my care service. There are new forms again and the old ones no longer work. This is the second time since my illness began. But you can really make life difficult for yourself. That...

Seitenaufrufe: 490 (aka Medikamentenchaos) Also eine Sache muss ich ja echt mal loswerden. Ja, Dokumentation ist ein Fass ohne Boden. Eine vorhandene Dokumentation auf Vordermann bringen zu Wollen die Büchse der Pandora. Aber meine Fresse. Da habe ich ja noch lieber gar keine Doku als das, wonach – oder zumindest womit – hier seit letztem Jahr gearbeitet wird. Es...

And so, as is often the case, a message is sent to the management. And bombshell it was. It woke up a few people there and sent them into a frenzy. The very next morning, the whole baggage of my nursing service was there without any agreement. Management, quality management, team leaders. And nurses, of course. And my parents, who were visiting.

Page views: 550 This is roughly what it looks like when I say the screenshot is self-explanatory. Here, for example, is an email that caused my doctor a lot of incomprehension and resigned head-shaking in the second half of the week. As funny as this may sound ex post, we're still talking about two days of unnecessary fever. And this is what my message looked like:...

Page views: 586 Welcome to my world of a maximum of 3.5 hours sleep. Been like this for about two weeks now. Even in the presence of my sister and taking photos to explain, I'm told I'm wrong. The mask is on correctly. Apart from pulling it even tighter - which doesn't make it blow into my eyes any less, it just doesn't even blow into my eyes any more...

Seitenaufrufe: 501 Liebes Tagebuch, auweia. Das geht ja schon gut los, diese Woche. Wenn ich ausgerechnet am Wochenende nichts veröffentliche, hat das meistens die gleiche Ursache. Ohne dem eine Wertung beimessen zu wollen: Pflege. Und ohne der Pflege einen Stempel aufdrücken zu wollen, vereinzelte positive Leistungen einzelner vermögen doch nicht über die miserable Gesamtleistung meines Pflegedienstes hinwegzutäuschen. True story....

Page views: 668 My pedicure has so far been carried out by a chiropodist, friends and family. After the latest „incident“ following the removal of supposedly dead skin, the question arose once again as to whether professional chiropody would be better suited to me. In and of itself, I would immediately say sure, that makes sense. But who is going to pay for it in the long term? The same thing...

Pageviews: 749 Dear Diary, As much as I'm thinking about changing care provider, can I even seriously consider it? Imagine people working there with respect and common sense. What am I supposed to get upset about then? That's not possible. Somehow I can't shake the feeling that my excitement...