To Do List for the Blind
Hang digital picture frames everywhere in the flat and on the smoker's balcony and in the guest WC that show live what needs to be done.
What actually happened with... team meeting?
Page views: 515 There was something, let me think. That's right. That was yesterday. Not that I'd forgotten. Or assumed that I wouldn't be forgotten this Mel. I don't want to hypothesise about the reasons for this, that would be an unnecessary waste of energy. I'm just saying that I've already told everyone that...
His 6th words
Page views: 510 aka ventilator weaning for ALS My personal highlight of the otherwise less amusing second half of the week, i.e. last week: a letter from the medical service to my care service. There are new forms again and the old ones no longer work. This is the second time since my illness began. But you can really make life difficult for yourself. That...
His 4th words
Page views: 466 (aka medication chaos) So I really have to get one thing off my chest. Yes, documentation is a bottomless pit. Wanting to update existing documentation is a Pandora's box. But my arse. I'd rather have no documentation at all than what they've been working on - or at least what they've been working with - since last year. It...
His 3rd words
And so, as is often the case, a message is sent to the management. And bombshell it was. It woke up a few people there and sent them into a frenzy. The very next morning, the whole baggage of my nursing service was there without any agreement. Management, quality management, team leaders. And nurses, of course. And my parents, who were visiting.
His 2nd words
Page views: 523 This is roughly what it looks like when I say the screenshot is self-explanatory. Here, for example, is an email that caused my doctor a lot of incomprehension and resigned head-shaking in the second half of the week. As funny as this may sound ex post, we're still talking about two days of unnecessary fever. And this is what my message looked like:...
Perceptual disorders for breakfast
Page views: 561 Welcome to my world of maximum 3.5 hours of sleep. Been like this for about two weeks now. Even in the presence of my sister and taking photos to explain, I'm told I'm wrong. The mask is on correctly. Apart from pulling it even tighter - which doesn't make it blow into my eyes any less, it just doesn't even blow into my eyes any more...
No word on Sunday
Page views: 486 Dear diary, ouch. This week is already off to a good start. If I don't publish anything at the weekend of all days, it's usually for the same reason. Without wanting to attach any importance to it: Maintenance. And without wanting to put a stamp of approval on care, individual positive achievements cannot hide the miserable overall performance of my care service. True story....
Pedicure
Page views: 653 My pedicure has so far been carried out by a chiropodist, friends and family. After the latest „incident“ following the removal of supposedly dead skin, the question arose once again as to whether professional chiropody would be better suited to me. In and of itself, I would immediately say sure, that makes sense. But who is going to pay for it in the long term? The same thing...
You are right and I mean peace
Pageviews: 726 Dear Diary, As much as I'm thinking about changing care provider, can I even seriously consider it? Imagine people working there with respect and common sense. What am I supposed to get upset about then? That's not possible. Somehow I can't shake the feeling that my excitement...