Page views: 512 I must have missed something. Of course, with my 24-hour intensive care, it's hard to avoid a carer noticing what I do all day long. And as I unfortunately don't know any method of releasing a TAN with just my eyes, my carers are allowed to do it for me. I can't blame anyone if they...
Page views: 652 Let's see, what else happened that was exciting? One of my carers got a new tattoo while he was at home. It looks good. For me as a layman, it was also very neatly done. When I looked through the pictures of the studio where he works on Instagram, I noticed a few works in particular. The...
In this specific case, the AOK did not have to pay anything. Precisely because the expert was of the opinion that my ALS would not change anything in the medium term. I don't want to give too much away. But it will be good.
Page views: 860 True story. After the incidents at the beginning of the year, my shopping behaviour has changed drastically. Whereas I used to buy drinks and snacks every month for a good €120, sometimes more than double that depending on the season, I've completely cancelled everything except coffee. Now there's just nothing left. In case you haven't realised what a...
Page views: 838 Part 3 of 3 Shitting has to be learnt. New day, new luck. Have you digested yesterday's post yet? Well, I'm only moderately so. To be honest, my enthusiasm for writing about my ridiculous Pippifax problems has not yet returned. But this should be the shortest part by far. If you missed the first two, you can find them here...
Pageviews: 781 Part 2 of 3 Problems that mean the world. Can. But definitely do when they do. We were in trouble. And I'm starting an extra post for that? Actually, yes. Over the last few weeks, months and years, I have repeatedly experienced the lack of understanding about my ALS disease. Especially when it comes to medical...
Pageviews: 802 (Part 1 of 3 Nothing in our lives can be taken for granted. Not even the ability to take a shit. Nice shit. Rarely is this expression more apt than in this context. Because today I want to dish up some shit for you. To be precise, I would like to tell you about this very thing. I've neglected writing for the last two days for some reason. Instead...
Page views: 722 Dear diary, why can't I think of anything more positive to write about? You could almost get the impression that I'm not doing very well at the moment. No need to worry, I'm not about to jump off the next bridge. The effort involved in getting there in the first place seems far too high. If you can...
Pageviews: 725 Actually, you should be slapped for this Baby Hit-list me one more time. A slap left and right, that would be the appropriate reaction. But no, as a pacifist I'm still holding out the other side of myself. Stupid, but on the other hand, good things take time. And so, for the time being, I'll stick to the hopefully entertaining,...
Page views: 820 People simply don't want to believe me when I say that I'm not hungry or have no appetite right now and therefore don't want any more food to drink. People just don't want to believe me when I say that 1.5 litres of the finest Munich tap water via the PEG will last me until 4pm. I'm not in the mood to drown. You want to...
