Page views: 694 Dear diary, Once again the management of my care service has managed to disappoint me across the board. Once again, I've been taken for a ride. Yes, a crass choice of words for a crassly shitty situation. One drama follows the next. After the last scandal, the management told me so much about what they were planning with regard to the full-time positions to be filled...
Page views: 803 So. Now it's getting entertaining. As always, I won't name names. But I am taking the liberty of copying whole passages of text because they are necessary to understand the overall situation. My nursing service may criticise me for not making this information public. Yes, that may well be the case. But then the nursing service management would not have told me in my own...
Seitenaufrufe: 660 Hab ich schon einmal erwähnt, dass niemand Besserwisser leiden kann? War eine rhetorische Frage. Natürlich habe ich das schon einmal erwähnt. Mehrfach, um genau zu sein. Wenn das aber doch so ist, und du noch immer beim Lesen bist, welchen Grund hätte ich, mich jetzt noch zu ändern? Mal ganz davon abgesehen, dass sich Menschen nicht ändern....
Page views: 693 It doesn't help. My eye control is more and more important for survival. Once again I couldn't make myself noticed this morning because the mask slipped out of place and tightened. It's really rarely stupid. I'm lying there, listening to my carer in the kitchen, in the dining room watching the documentary, at the coffee machine. Whilst I've been lying there for 15...
Page views: 677 Dear diary, as much crap as I've had to live through in the past few days and weeks, we need a change of subject, don't you think? It would be more appropriate to say months and had to live through. Or even survived. Oh man and woman, I love words, language, twisted sentences and sarcasm. And I like to explain all sorts of things...
Page views: 707 Dear diary, it's like being in a madhouse. I recently reported that my carer was once again too stupid to count to 24. To put it another way, whoever opened the last box of my drinkable food didn't tell me. Now you could assume that I was also told...
Page views: 740 Dear diary, I had actually resolved to swear less. And what kind of ideas do I come up with? Yeah, I'm creating a new category called „excitement“. Now that's what I call failing with a bang. But I also have topics on the table all the time that you can only shake your head at. The fact that I have to deal with...
Page views: 647 Dear diary, it wasn't long ago that I wrote something about how little pain I generally feel. Or at least I don't let it show. However, there were one or two things I failed to mention. In my last post on the subject of pain, I only touched on acute, or if you want to call it that, spontaneous pain...
Page views: 646 Dear diary, what's this entry all about? I started it almost a year ago and then left it. It was a response to the following question in an ALS Facebook group. Good morning This disease does not affect me, but a good friend. (...) He can no longer write for himself and has...
Seitenaufrufe: 591 Moin, mein liebes Tagebuch, heute wird ein guter Tag. Nachts um 5 gab es ein kleines „Missverständnis“, statt meine Leckage an der Maske als Ruf zu verstehen wurde mal wieder eine undichte Maske vermutet. Ohne zu fragen wurde sie festgezogen. Ohne zu fragen, ob alles in Ordnung ist und ohne zu fragen, ob ich noch Alarm auslösen...
