Seitenaufrufe: 751 Liebes Tagebuch, es kam, wie es kommen musste. Wie es immer kommt, wenn ich versuche, meinen Mitmenschen die Zeit bei mir zu versüßen. Meine Großzügigkeit wird gnadenlos ausgenutzt. Vermutlich nicht einmal absichtlich und böswillig sowieso nicht. Aber am Ergebnis ändert das nichts. Tagelang beschäftigen tut das mein Hirn. Mein Puls rast, statt 60-70 in Ruhe kann ich...
Page views: 727 Last time I tried to explain what changes occur to the nerves as a result of ALS. The bottom line is that I can hardly move anything any more - keyword tetraparesis - but I can feel and sense everything as I always have. And also want to feel. My girlfriend gave me a „scratcher“ for my birthday, a telescopic stick fork scratcher...
Page views: 850 Today, for a change, I'm not complaining about my care service or moaning. Quite the opposite. Today I want to tell you something about the real life of an ALS patient. Something you won't find in any textbook. Why doesn't anyone write about such things? Good question. Probably because it doesn't make any money and...
Page views: 641 Dear diary, there are some things I don't need to understand. But I would like to. Lately, I've been thinking a lot about my care. Am I expecting too much? Are my expectations too high? If you ask me my opinion on the care crisis in Germany, I'm torn. On the one hand, I'm convinced that the...
Pageviews: 652 Dear diary, I just can't seem to get it right. Just when you think you've had enough vomit this week... just when you think things are about to change for the better in your care... just when you're thinking about whether changing care provider might not be a wise decision after all... Then it's time for another hearty...
Page views: 642 Dear diary, help me. I don't want to have to lie in my nursing bed again and watch a trickle of blood run from my mouth into my pillow. After all the trouble and stress I've just had because of my bleeding gums, I've had enough for the next few weeks. I already have a toothbrush ban...
Page views: 690 Dear diary, I'm glad you're here. You understand me. If I disagreed with you in a factual discussion, you wouldn't insist on your opinion and harp on about it without questioning it. I would have forgotten something, I hear that several times a day. Although the balance 100% on „Patrick didn't forget anything, but carer made a mistake“...
Pageviews: 632 Dear Diary, To this day, I'm fascinated by the fact that at 43 years old, I'm obviously already part of the age group we used to call „goths“ when I was a kid. Instagram is too much adverts and BS for me. When I talk about Facebook, my carers laugh at me. Who still has Facebook today. And yet another blog....
Pageviews: 201 If you're serious about turning your blog into a business, then you need to start thinking about ways to grow your audience. Depending on your niche, there are a number of things you can do to reach more people and get them interested in what you have to say. Once your website is set up, it's time...
Page views: 721 Dear diary, it's actually an irony of fate. I never used to have a problem drinking two bottles of water between 15 gin and tonics when doing sport or partying, for example. Or at the Oktoberfest. When I remember that I used to drink ten litres in the best of times, that's unthinkable today. Today that would be...
