Page views: 942 Note: If you don't do everything yourself... I'll rewrite the medication plans as soon as I can find an hour to do it. Because the ones I had from the old nursing service were so wrong. It's an indictment that in eleven months they didn't manage to at least correct this and document it properly. The following medication plans are...
Pageviews: 1,016 Yes, I know that there is something like this somewhere in the file of every care service. Theoretically. Maybe even practically. But even then, such plans remain pure theory. They don't work in practice. I've experienced things that you can't imagine. A carer (who doesn't speak German, English, French or Spanish) seriously...
Page views: 1,194 It really doesn't take much to make me happy. As is so often the case, it's the little things that make life more beautiful. My fingers are constantly contracting. Unfortunately, this not only looks like shit and isn't exactly healthy, but it's also uncomfortable. So please stretch my fingers out again at every opportunity. When I...
Page views: 1,074 As well prepared as we may be, no matter how much time we spend together, there will always be situations where you don't have a clue what I need. When I sleep, for example, I wear the nose-mouth mask. Under this, it is physically impossible to generate positive pressure when exhaling without using your own muscle power. I can therefore use this...
Page views: 1,003 Some of these things hurt like hell, others are just frustrating or will annoy me to death if I live long enough to be annoyed to death. Still others are directly related to my breathing. They have an immediate effect on everything in my body. There's no room for discussion. What...
Seitenaufrufe: 961 Wenn alle Stricke reißen, verständige ich mich direkt über die Augen. Es ist deshalb enorm wichtig, dass du dich bei allen Tätigkeiten an und mit meinem Körper ausschlich auf mich fokussierst. Zeichen, die ich verwende: Schnelles Augenblinzeln (Augen schließen und öffnen sich ständig) Leg mich sofort komplett flach auf den Rücken mit Kopf nach rechts. Kein Putzen....
Page views: 1,189 I wrote this collection of instructions myself using my eye control. I spent up to 18 hours a day in front of the monitor. I would therefore appreciate it if you would read my recommendations very carefully and take them to heart. Care instructions, aids for new and lateral entrants, version dated 22/07/2022, P. Ruppelt 2022 This is what it says...
Page views: 1,402 It's been a while since I had any problems with my health insurance company. Since I've had a personal contact who is able to understand the many, often only minor, but practically always very special circumstances and circumstances of ALS diseases, things have been going well. At least in theory. Because unfortunately my usual contact person is also on holiday at some point. Or...
Page views: 1,344 My God. I'm not so grateful for any other IT product that exists. But my gosh, this thing has cost me many a nerve. It's by far the best hardware and best software I know of in the PC eye control segment. But me and my standards again. Such a huge fuck-up. I would...
Pageviews: 1,067 Awesome shit. You'd think there was nothing going on in my life. And yet I'm plagued by the little bit of conscience I still have. I haven't answered so many messages, or at least not properly. So many lovely people who shared my original post (and there were hundreds of them in the first few hours alone)...
