Page views: 931 Note: If you don't do everything yourself... I'll rewrite the medication plans as soon as I can find an hour to do it. Because the ones I got from the old nursing service were so wrong. It's an indictment that in eleven months they haven't managed to at least correct this and document it properly. The following medication plans are...
Page views: 1,001 Yes, I know that there is something like this somewhere in the file of every care service. Theoretically. Maybe even practically. But even then, such plans remain pure theory. They don't work in practice. I've experienced things that you can't imagine. A carer (who doesn't speak German, English, French or Spanish) seriously...
Seitenaufrufe: 1,173 Es braucht echt nicht viel, um mich glücklich zu machen. Wie so oft sind es die kleinen Dinge, die das Leben schöner machen. Meine Finger kontrahieren sich ständig. Dummerweise sieht das nicht nur scheiße aus und ist nicht gerade gesund, sondern es ist auch unangenehm. Strecke deshalb bitte bei jeder Gelegenheit meine Finger wieder aus. Wenn ich...
Page views: 1,059 As well prepared as we may be, no matter how much time we spend together, there will always be situations where you don't have a clue what I need. When I sleep, for example, I wear the nose-mouth mask. Under this, it is physically impossible to generate positive pressure when exhaling without using your own muscle power. I can therefore use this...
Pageviews: 998 Some of these things hurt like hell, others are just frustrating or will annoy me to death if I live long enough to be annoyed to death. Still others are directly related to my breathing. They have an immediate effect on everything in my body. There's no room for discussion. What...
Page views: 949 When all else fails, I communicate directly through my eyes. It is therefore extremely important that you focus exclusively on me in all activities on and with my body. Signs that I use: Rapid eye blinking (eyes close and open constantly) Immediately lay me completely flat on my back with my head to the right. No cleaning....
Page views: 1,181 I wrote this collection of instructions myself using my eye control. I spent up to 18 hours a day in front of the monitor. I would therefore appreciate it if you would read my recommendations very carefully and take them to heart. Care instructions, aids for new and lateral entrants, version dated 22/07/2022, P. Ruppelt 2022 This is what it says...
Page views: 1,389 It's been a while since I had any problems with my health insurance company. Since I've had a personal contact who is able to understand the many, often only minor, but practically always very special circumstances and circumstances of ALS diseases, things have been going well. At least in theory. Because unfortunately my usual contact person is also on holiday at some point. Or...
Seitenaufrufe: 1,329 Meine Fresse. Für kein anderes IT-Produkt bin ich so dankbar, dass es so etwas gibt. Aber meine Fresse, das Teil hat mich so manchen Nerv gekostet. Es ist mit Abstand die beste Hardware und beste Software, die ich aus dem Segment der PC-Augensteuerung kenne. Aber ich und meine Ansprüche wieder. So ein Riesen Fickfuck. Ich würde mich...
Pageviews: 1,056 Awesome shit. You'd think there was nothing going on in my life. And yet I'm plagued by the little bit of conscience I still have. I haven't answered so many messages, or at least not properly. So many lovely people who shared my original post (and there were hundreds of them in the first few hours alone)...
