amyotrophelateralsklerose

Volcano: Cleaning (after each use)

Pageviews: 608 Once the capsule carrier has cooled down a little, twist the two parts apart again. Use the small wooden brush to remove the residue from the tube holder. Also use the small brush to remove all residue from the capsule holder. Then empty the capsule (residual waste). Finally, brush out the inside of the heating chamber.

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Ella bella? Assolutamente no.

Page views: 733 Dear diary, if I worked like this. I'd have no more customers and would have been broke long ago. I would be ashamed of myself. I think that surprisingly often when it comes to suppliers and manufacturers of medical aids. I fully understand that the high costs of such products and services are not entirely out of the question.

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Smoking (Actually inhalation)

Seitenaufrufe: 657 Zum Rauchen hat sich mein englisches tea-in-bed Reis-Tablett bewährt. Darauf steht der Verdampfer stabil und sicher, wenn du ihn zum Rauchen zu mir ins Bett stellst. Um rauchen zu können benötigen wir den Verdampfer, den befüllten Kapselträger und den Schlauch mit Mundstück. Der Kapselträger wird vorsichtig auf den Verdampfer geschraubt. Schraube ihn nicht zu fest, sonst bricht...

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Volcano: Preparation (fill with capsule)

Page views: 549 The first thing we need is a fresh capsule of cannabis. You can find them on the cooking island in the kitchen. I get the capsules pre-filled from the pharmacy. Because grinding the cannabis and filling the capsules is quite labour-intensive manual work, delivery sometimes takes two weeks. Please bear this in mind and let me know in good time if I need to reorder...

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WiLAmed AIRniva (respiratory gas humidifier)

Page views: 760 I have a very big request on the subject of topping up the water in the humidifier. I emphasise this so clearly because I hope you will be the first to comply with my request. Special request: fill to at least 50% The humidifier must always, at all times, without exception, be filled to at least 50% with water. If there is less water in the humidifier, this...

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ResMed Astral 100 (ventilation)

Page views: 858 For legal reasons, my provider (Vivisol, see the „Important contacts“ section for contact details) has to familiarise me with the device. As my ventilation is never switched off and I only use a single ventilation profile, you don't need to know too much about it. My devices I have two identical Astral 100s. The emergency machine is always connected to a separate tube...

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The Koschten.

Page views: 684 Dear diary, I've once again spent quite a lot on my care and treatments in the last few weeks. It feels like I've been receiving co-payment bills almost every day. This always amazes my carers and therapists. There don't seem to be many ALS patients with the highest care level and 90% severe disability who are not exempt from co-payments. But exactly...

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Fascination Fasciculation & Cannabis

Page views: 915 Moin, it's a thing with the radio. Pretty much everything is repeated all the time. People are only too happy to claim that there are so many good musical, factual or other editorial alternatives that could be broadcast. Of course there could be, but every station that does that hasn't made it into the mainstream...

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Upwind.

Page views: 591 Dear diary, a few turbulent days lie behind us. Between Easter week, a family visit and a panic attack, my carer has lost touch with reality and, as a result, two new carers have spontaneously started work. The first one yesterday in the late evening - some would call it „night“ if you don't finish until 1.00 am -...

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The storm before the calm.

Page views: 644 Dear diary, but something always has to happen first. Why do I, as the customer that I am at the end of the day, have to show complete apathy for the seriousness of the situation to be recognised? Dogs that bark don't bite. So they say. Anyone who knows me knows that I like to defend my opinion with arguments. Especially when...

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