amyotrophelateralsklerose

For my birthday I wish...

Page views: 962 Well, that's an idea. Before anyone asks me what you can give me as a present... And to make sure the whole thing has a certain appeal, I promise to fill the donation pot at the end. So go on, donate diligently or do you want to make me poor? It's also for a good cause. Link to my fundraising campaign: https://www.facebook.com/donate/774410683618091/

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Of course you visit me

Page views: 1,304 This question is very popular. Can I visit you or are you uncomfortable? In itself, the question is understandable. But hey, I don't necessarily look like that, but I'm still the same complete idiot I used to be. Nothing has changed about the fact that I like company and can get anyone into bed. And let's see...

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I told you so

Page views: 1,198 To quote Sheldon, under normal circumstances I'd say I told you so. But, as I have told you so with such vehemence and frequency already the phrase has lost all meaning. Therefore, I will be replacing it with the phrase, I have informed you thusly. For arse. I'm fucked. Or am I screwed...

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If I don't do everything myself

Page views: 1,180 Prepared article, deliberately not up to date. I could have published this article a few days or weeks ago and deliberately decided against it in order to rule out any possible conclusions about the carers on duty at the time. I will clarify this with the QM and QB of the nursing service, but certainly not here. But the background is necessary for the story, otherwise...

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VaporMed Volcano Medic 2 (inhalation, hot)

Page views: 1,328 One of my favourite topics. Yes, I smoke pot. And on prescription with free home delivery from my pharmacy. What sounds like every stoner's dream actually has a sound medical background. Before this form of therapy, I was plagued by incessant fasciculations (muscle twitches) all over my body, especially in my extremities, stomach and shoulders. At night they were joined by at least...

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Removing the nose mask

Page views: 961 Attention! The manufacturer's instructions only describe the basic procedure for patients who require ventilation for support and can still breathe independently while the mask is being changed. Since the mask is necessary for life support in my case, for example, we have to reconnect the tube much earlier and my ventilator is never switched off. This one...

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Putting on the nose mask

Page views: 1,033 Attention! The manufacturer's instructions only describe the basic procedure for patients who require ventilation for support and can still breathe independently while the mask is being changed. As the mask is necessary for life support in my case, for example, we have to reconnect the tube much earlier and my ventilator is never switched off. This one...

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Description of the individual parts of the nose mask

Page views: 936 As with all manufacturer instructions quoted, I will ask for permission in good time, but I would like to thank you in advance. The nose mask can be disassembled for cleaning (see section „Disassembly“). If the hose is stretched tight - which should never be the case, but happens every day - the nose mask can sometimes fall when it is put on...

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ResMed AirFit N20 Classic Nasal Mask

Page views: 992 I wear the nose mask during the day. It makes me feel safe and allows me to communicate at least partially orally. In addition to allowing me to eat and drink, the nose mask has another decisive advantage over the nose-mouth mask. By opening my mouth and palate, I can build up positive pressure in my throat, which I can use to...

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