amyotrophelateralsklerose

His 6th words

Seitenaufrufe: 515 aka Beatmungsentwöhnung bei ALS Mein persönliches Highlight der ansonsten weniger lustigen zweiten Wochenhälfte, also, letzter Woche: ein Schreiben vom Medizinischen Dienst an meinen Pflegedienst. Es gibt mal wieder neue Formulare und die alten gehen nicht mehr. Schon das zweite Mal seit Beginn meiner Erkrankung. Man kann sich halt aber auch echt das Leben selbst schwer machen. Das...

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His 5th words

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His 4th words

Page views: 491 (aka medication chaos) So I really have to get one thing off my chest. Yes, documentation is a bottomless pit. Wanting to update existing documentation is a Pandora's box. But my arse. I'd rather have no documentation at all than what they've been working on - or at least what they've been working with - since last year. It...

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His 3rd words

And so, as is often the case, a message is sent to the management. And bombshell it was. It woke up a few people there and sent them into a frenzy. The very next morning, the whole baggage of my nursing service was there without any agreement. Management, quality management, team leaders. And nurses, of course. And my parents, who were visiting.

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Hit List (Week 27)

That could have backfired badly. We were lucky in our misfortune. Does someone have to die for something to - maybe - happen? My doctor is convinced that I should have been fever-free two days earlier.

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His 2nd words

Seitenaufrufe: 552 So ungefähr sieht das aus, wenn ich sage, der Screenshot sei selbsterklärend. Hier hätten wir beispielsweise eine E-Mail, die in der zweiten Wochenhälfte für viel Unverständnis und resignierendes Kopfschütteln bei meinem Arzt sorgte. So lustig das sich ex post anhören mag, wir reden hier immerhin noch von zwei Tagen unnötigen Fiebers. Und so sah meine Mitteilung aus:...

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His first words

Seitenaufrufe: 520 (aka „Seine 1. Worte“) Wie nur allzu oft ist das Wochenende bereits angebrochen und ich habe wieder nicht geschafft, auch nur einen einzigen Post zu schreiben. Geschweige denn, auf „veröffentlichen“ zu klicken. Davon entfernt habe ich mich so weit wie selten. Und ich kann dir sagen, an zu wenig Gesprächsstoff liegt das wahrlich nicht. Wirf mal einen...

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Hit List (Week 26)

Discussion with a carer about whether it is really a nail fold infection, as my doctor claims. She is of a different opinion. If she has her way, I'll have to get a new chiropodist straight away. Guys, she's getting on my nerves.

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Hit List (Week 25)

What kind of week was that again? Hardly a night without trouble. Last night? It was okay, I think. I'm about to file what happened under „unimportant, forget it“. That's how I started writing my text. Yesterday. Today? I'd have to revise that. After four hours of sleep, I had to be vacuumed badly. Reason follows. After all, I said that...

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