amyotrophiclateralsclerosis

Oral care

Page views: 538 If my carers had followed these instructions, they would still be relevant today and I would have been spared a lot of grief: When it comes to oral care, one thing is important above all else: Not wasting time and not scrubbing my gums. If the toothbrush switches off, the maximum recommended brushing time has been exceeded. We brush our teeth, not the towel underneath, not the...

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Facial care

Page views: 571 Wiping your face with lukewarm water is enough for me. A little shower gel every now and then is okay, but no more than that. However, if you use shower gel, I insist on rinsing again with clear water afterwards. And one more request: Before you soap me up in anything, look at what you're holding. Save us the...

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Urination ("wee-wee")

Seitenaufrufe: 591 Ich bin zwar nicht inkontinent, aber durch die verkümmerte Leisten-, Becken-, Gesäß-, Bein- und Bauchmuskulatur fällt es mir schwer, Urinreste „rauszudrücken“ und zeitweise auch, binnen Sekunden auf Knopfdruck zu pinkeln. Du brauchst deshalb nicht die ganze Zeit bei mir stehen und die Urinflasche oder gar meinen Penis halten, wenn ich pissen muss. Wer immer euch das in...

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Hygiene and care

Seitenaufrufe: 655 Mein absolutes Lieblingsthema. Man sagte mir, so etwas müsse man nicht erklären. Meine Erfahrung ist da anderer Meinung. Denn in der Vergangenheit haben es PflegerInnen – mehrfach – sogar trotz mündlicher Erklärung geschafft, Und so bin ich der Meinung ja doch, natürlich muss ich dir erklären, worauf ich Wert lege und worauf es bei mir ankommt. Woher...

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His first time.

Page views: 697 Yay! The next excitement. Dear diary, it would be boring if nothing absurd happened. I'm introducing a new category for this: Patrick's panopticon. Panopticon, an awesome word. A rarely used word, but one of my favourites. Maybe even my favourite, or maybe not, but it is. The Brockhaus says: Panopticon [from the Greek optikós „the...

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Team building undesirable.

Seitenaufrufe: 649 Liebes Tagebuch, ein letztes Mal hat es die Geschäftsführung meines Pflegedienstes geschafft, auf ganzer Linie zu enttäuschen. Wieder einmal hat man mich verarscht. Ja, krasse Wortwahl für eine krass beschissene Situation. Ein Drama jagt das nächste. Da hat mir die Geschäftsführung nach dem letzten Eklat so vorgeschwärmt, was sie in Hinblick auf die zu besetzenden Vollzeitstellen planen...

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Positioning of my right ear

Page views: 565 Due to the fact that I tend to spend much more time on my right ear than my left, I quickly run the risk of it becoming sore. There are certainly many „recognised“ techniques and aids to prevent this, but for me the following, totally simple and convenient variant also works. All we need for this is...

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Shift, change.

Page views: 780 So. Now it's getting entertaining. As always, I won't name names. But I am taking the liberty of copying whole passages of text because they are necessary to understand the overall situation. My nursing service may criticise me for not making this information public. Yes, that may well be the case. But then the nursing service management would not have told me in my own...

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Stretch and extend fingers

Page views: 658 I know it's annoying. But believe me, even more annoying than constantly stretching out my fingers is constantly feeling them tighten and not being able to do anything about it. Stretch my fingers out flat and straight. Then squeeze them slightly so that they are stretched. Hold this position for about ten seconds. Let my fingers...

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Alternating shift.

Page views: 626 Have I ever mentioned that nobody likes know-it-alls? It was a rhetorical question. Of course I've mentioned it before. Several times, to be precise. But if that's the case, and you're still reading, what reason would I have to change now? Quite apart from the fact that people don't change....

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