amyotrophiclateralsclerosis

Silent night, secret night

Page views: 824 A tragedy in six acts So I'm more or less good at moaning if I want to and make an effort. So on with the text. I assume you've already read the first part of this story. If not, you can find it here. The story cost me €7,000, so it's well worth a look. One more thing...

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The €7,000 PEG

Page views: 881 Nothing but stress and anger And there it was, the PEG. Secretly, quietly and silently. Kaboom. To be honest, it was planned a little differently, my reporting. I hadn't intended to wait over three months to do it. But it wasn't planned that I would have a lot of problems during the first eight weeks with the...

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Change nose-to-mouth mask to nose mask

Page views: 902 The change from nose-mouth mask to nose mask typically takes place: Here we go. As usual, I lie on my back with my head turned to the right. You have of course cleaned the nose mask and laid it out with the straps open and not twisted. You lift my head slightly and turn my head straight to the centre. As with the other change...

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Change nose mask to nose-to-mouth mask

Pageviews: 918 This is the much-publicised sexy photo love story of my masks and me. We start with the change from nose mask to nose-mouth mask. Here's what happens: Good preparation is half the battle. Prepare the nose-mouth mask. Open the lower magnetic fasteners on the lower straps. Make sure that the upper straps are correctly inserted into their respective holders and are not...

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Change mask

Pageviews: 792 Changing masks is probably the topic that stresses everyone out the most. That's why I've described every single step in detail and illustrated everything with photos of myself. If you follow these four principles, nothing can go wrong:

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Assembling the nose mask

Pageviews: 992 Yes, you are reading correctly. Another copy & paste mask tutorial. An employee of my nursing service could possibly have avoided a warning if he had taken a look at the mask before he tried to put it on again and again and again the wrong way round. What is logical for the average person is not for a trained intensive care nurse with expert training...

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Disassembling the nose mask

Page views: 957 Once again you ask yourself, is this necessary? Yet another copy & paste from a user manual? Seriously? Yes, I'm completely serious. I kicked the last carer who tried to put a mask on me the wrong way round in agony out of my team. And he received a warning from his employer. There were still...

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Cold coffee poop

Seitenaufrufe: 957 Eine quälende Stunde sinnloser Erklärungsversuche, wie man die Maske korrekt aufsetzt… und einen deshalb kalten Kaffee mit ekelhaft schmeckenden Medis später. 30-Tage-Countdown für „Patrick lässt sich eine PEG legen“ gestern auf Null gesetzt. Hätte der Pfleger meine Anleitung gelesen statt mich bei jedem Hinsetzen denselben Scheiß wieder neu erklären zu lassen wie so ein verliebter Teenager… hätte...

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For my birthday I wish...

Page views: 1,015 Well, that's an idea. Before anyone asks me what you can give me as a present... And to make sure the whole thing has a certain appeal, I promise to fill the donation pot at the end. So go on, donate diligently or do you want to make me poor? It's also for a good cause. Link to my fundraising campaign: https://www.facebook.com/donate/774410683618091/

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