amyotrophiclateralsclerosis

Care instructions with a difference

Page views: 1,189 I wrote this collection of instructions myself using my eye control. I spent up to 18 hours a day in front of the monitor. I would therefore appreciate it if you would read my recommendations very carefully and take them to heart. Care instructions, aids for new and lateral entrants, version dated 22/07/2022, P. Ruppelt 2022 This is what it says...

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When case workers play doctor

Page views: 1,402 It's been a while since I had any problems with my health insurance company. Since I've had a personal contact who is able to understand the many, often only minor, but practically always very special circumstances and circumstances of ALS diseases, things have been going well. At least in theory. Because unfortunately my usual contact person is also on holiday at some point. Or...

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Eye control

Seitenaufrufe: 1,345 Meine Fresse. Für kein anderes IT-Produkt bin ich so dankbar, dass es so etwas gibt. Aber meine Fresse, das Teil hat mich so manchen Nerv gekostet. Es ist mit Abstand die beste Hardware und beste Software, die ich aus dem Segment der PC-Augensteuerung kenne. Aber ich und meine Ansprüche wieder. So ein Riesen Fickfuck. Ich würde mich...

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Acknowledgement

Pageviews: 1,067 Awesome shit. You'd think there was nothing going on in my life. And yet I'm plagued by the little bit of conscience I still have. I haven't answered so many messages, or at least not properly. So many lovely people who shared my original post (and there were hundreds of them in the first few hours alone)...

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Care contract

Page views: 933 Treasures, it's time to celebrate for now. New care contract signed and sealed. An incredibly big thank you to everyone I can't list individually. You know how happy I am that you exist.

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August of Terror is covered

Seitenaufrufe: 987 Nun ist es schon Donnerstag, die Zeit rennt und nun ja, es sieht bei mir alles so aus, als würde es mit meinem neuen Pflegedienst funktionieren. Es waren schon mehrere Mitarbeiter zur Einarbeitung hier. Die zwei Jungs gestern machten einen ruhigen, aber motivierten und professionellen Eindruck. Der Kollege heute war auch klasse. Abgesehen von seiner mit mir...

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Supplementary budget Cigarette No. 1

Page impressions: 1,104 Supplementary budget for yesterday: all kinds of different varieties and flavours of tobacco from e-cigarettes stuffed into empty capsules of the Kiffomat 3.000 (better known among health insurance companies as Vapormed Volcano MEDIC 2 and if you ask me, it's a Storz & Bickl Volcano Hybrid) in a painstaking and delicate manual process. Huge thanks to Geli and Erik. So can...

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The principle of hope

Pageviews: 1,064 Some people are beating their hands over their heads at my serenity coupled with deep black humour. But what's the point of stressing yourself out? Nothing. It could be worse. Besides, there is hope that there is hope. At least I hope so. At the moment, however, it all looks as if my puzzle will come together after all...

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Somehow it will work out

Seitenaufrufe: 973 Es ist an der Zeit für ein kleines Update. Ich komme zwar super mit der Augensteuerung zurecht, aber es ist kein Vergleich zu meinen gewohnten 500 Anschlägen pro Minute. Da ich jedem, der mir schreibt, persönlich antworte, dauert es und ich konnte noch alle Nachrichten beantworten. Sorry dafür. Sei versichert ich bin dankbar für jeden Tipp und...

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