DasIstALS

Lateral position right

Page impressions: 620 The storage on my right side is exactly the same as on the left side, only - surprise - mirror-inverted. My gaze is directed towards the balcony door. Because it is so important and is constantly forgotten, I emphasise three things regarding the lateral position in both directions with particular stress:

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Who needs food?

Page views: 713 Dear diary, I had actually resolved to swear less. And what kind of ideas do I come up with? Yeah, I'm creating a new category called „excitement“. Now that's what I call failing with a bang. But I also have topics on the table all the time that you can only shake your head at. The fact that I have to deal with...

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Lateral position left

Page views: 722 The most important thing: my head and neck have to be fully supported by my three pillows. My neck muscles are too weak to support my neck on their own. If my neck is not properly supported, I wake up with a sore ear after a short time. This is because the entire weight of my thick skull rests on this one ear. That's actually...

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Physio Exercise 2: Underarm Decompression

Page views: 707 With the first exercise, we have already relieved the affected nerve in the shoulder and back area. The next exercise is aimed more at the neck. Both exercises together bring about a considerable improvement. Ten minutes in the morning is often enough to get me through the day without pain. Firstly, bend my right arm. With...

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Physio Exercise 1: Pull out the shoulder blade

Pageviews: 696 My exercises are aimed at calming the stressed nerve, which presumably originates somewhere in the spine, runs behind the shoulder blades to the armpits and then extends through the arm to the tip of the thumb. That was probably completely anatomically incorrect, but hey, I'm neither a biologist nor a doctor. I'm not writing a textbook here, I'm just saying....

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Pain, let go.

Page views: 625 Dear diary, not so long ago I wrote something about how little pain I generally feel. Or at least I don't let it show. However, there were one or two things I forgot to mention. In my last post on the subject of pain, I only referred to acute, or if you want to call it that, spontaneous pain...

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Put legs up

Page views: 896 In the meantime, my physio is pretty much the only time my legs are mobilised. That's not enough. And you can tell. I'm losing my mobility, my muscles are atrophying due to illness anyway, the ligaments and tendons or whatever it is are shortening so much that I can't put my heels up to my bum....

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Multisonic medication nebuliser (inhalation, cold)

Pageviews: 877 To inhale me in the morning, it's best to prepare everything first because inhalation is really unpleasant and uncomfortable for me. So get the suction catheter ready, fill the Multisonic, get the mask ready to change, if you were planning to clean the nasal mask (which I put on after the inhalation), then it's best to do that now too. With everything I...

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Micropositioning torso and back

Page views: 688 Micro-positioning may not look like much in the end result, but if it is carried out properly and regularly several times a day, it has a whole host of positive effects: Unless I am positioned elsewhere, e.g. because of food intake, it really makes sense, especially to prevent the formation of solid secretions in the throat and lungs, to wake me up every 45-60 minutes to...

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Philips/Respironics E70 (cough assistant)

Seitenaufrufe: 851 Die Geräteeinweisung muss aus rechtlichen Gründen durch meinen Versorger (Vivisol, Kontaktdaten siehe Kapitel „Wichtige Kontakte“) erfolgen. Ich beschränke mich hier auf die konkrete Anwendung nur für meinen speziellen Fall. Anwendung Wie immer bei Arbeiten, die ein Abnehmen oder Öffnen der Maske erfordern, ist gute Vorbereitung das A und O. Lege Schlauch und Maske vom Hustenassistenten auf dem Bett...

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