Seitenaufrufe: 617 Als erstes brauchen wir eine frische Kapsel Cannabis. Du findest sie auf der Kochinsel in der Küche. Die Kapseln bekomme ich so fertig befüllt von der Apotheke. Weil das Grinden des Cannabis und Befüllen der Kapseln ziemlich mühselige Handarbeit ist dauert die Lieferung mitunter zwei Wochen. Bedenke das bitte und sag mir rechtzeitig Bescheid, wenn ich nachbestellen...
Page views: 854 Dear diary, please explain to me how a carer can fail to notice this. Over the last few days and weeks, okay, months, I can't stop marvelling. You have to keep both eyes closed a la Jackass. But I also have something in the recent past. I am convinced that the main cause is...
Seitenaufrufe: 837 Zum Thema Wasser im Befeuchter auffüllen habe ich eine ganz große Bitte. Ich betone das so deutlich, weil du hoffentlich der/die erste sein wirst, die meiner Bitte nachkommen wird. Sonderwunsch: mindestens 50% auffüllen Der Befeuchter muss immer, zu jedem Zeitpunkt, ohne Ausnahme, mindestens zu 50% mit Wasser gefüllt sein. Wenn weniger Wasser im Befeuchter ist, hat das...
Page views: 1,043 For legal reasons, my provider (Vivisol, see the „Important contacts“ section for contact details) must instruct me about the device. As my ventilation is never switched off and I only use a single ventilation profile, you don't need to know too much about it. My devices I have two identical Astral 100s. The emergency machine is always connected to a separate tube...
Page views: 770 Dear diary, I've once again spent quite a lot on my care and treatments in the last few weeks. It feels like I've been receiving co-payment bills almost every day. My carers and therapists are always amazed at this. There don't seem to be many ALS patients with the highest care level and 90% severe disability who are not exempt from co-payments. But exactly...
Page views: 1,041 Moin, it's quite a thing with the radio. Pretty much everything is repeated all the time. People are only too happy to claim that there are so many good musical, factual or other editorial alternatives that could be broadcast. Of course there could be, but every station that does that hasn't made it into the mainstream...
Page views: 637 Dear diary, a few turbulent days lie behind us. Between Easter week, a family visit and a panic attack, my carer has lost touch with reality and, as a result, two new carers have spontaneously started work. The first one yesterday in the late evening - some would call it „night“ if you don't finish until 1.00 am -...
Page views: 695 Dear diary, But something always has to happen first. Why do I, as the customer that I am at the end of the day, have to show complete apathy for the seriousness of the situation to be recognised? Dogs that bark don't bite. So they say. Anyone who knows me knows that I like to defend my opinion with arguments. Especially when...
Page views: 927 Dear diary, my warmest Easter greetings. For the readers of my blog, I wish you a belated Happy Easter. I still blur the date and time of my posts to make it impossible for third parties to establish a direct link to a person. And obviously, while I was writing, I thought that these lines were probably written around Easter...
Page views: 812 Dear diary, it came as it had to. As it always happens when I try to sweeten my fellow human beings' time with me. My generosity is mercilessly exploited. Probably not even intentionally and not maliciously anyway. But that doesn't change the result. It keeps my brain busy for days. My pulse races, instead of 60-70 at rest I can...
