Coulda, woulda, chain bike
Too much for me today. I dim the light, close my eyes and try to at least get a grip on my breathing, despite the sacrilegious pain.
Too much for me today. I dim the light, close my eyes and try to at least get a grip on my breathing, despite the sacrilegious pain.
When you have an oxygen saturation of 78, explain to your nurse that you have an oxygen concentrator...
Page views: 697 Yay! The next excitement. Dear diary, it would be boring if nothing absurd happened. I'm introducing a new category for this: Patrick's panopticon. Panopticon, an awesome word. A rarely used word, but one of my favourites. Maybe even my favourite, or maybe not, but it is. The Brockhaus says: Panopticon [from the Greek optikós „the...
Page views: 673 It doesn't help. My eye control is more and more important for survival. Once again I couldn't make myself noticed this morning because the mask slipped and tightened when I put it on. It's really rarely stupid. I'm lying there, listening to my carer in the kitchen, in the dining room watching the documentary, at the coffee machine. Whilst I've been lying there for 15...
Pageviews: 876 To inhale me in the morning, it's best to prepare everything first because inhalation is really unpleasant and uncomfortable for me. So get the suction catheter ready, fill the Multisonic, get the mask ready to change, if you were planning to clean the nasal mask (which I put on after the inhalation), then it's best to do that now too. With everything I...
Pageviews: 888 Good morning dear diary, the world has once again decided to fuck me. Unfucking unbelievable. As if all the crap from pressure sores to shortness of breath to €7,000 claims against me from my own care service weren't enough, let's go one better. Let's not only bleed Patrick's bank account, but also his gums. As announced, I will inform a...
Pageviews: 728 Dear diary, my day today is starting just as shitty as yesterday ended. Just like I used to like my steak before I turned to the dark side of the force and went vegan. Bloody. I deliberately say vegan living. Not eating a vegan diet. For me, vegan doesn't mean militantly not eating any animal products...
Except for the area around my eyes, nose and parts of my cheeks and jaw, I have already lost control of my physical self.
Exciting topic. Because without a good night's sleep, I'm good for nothing. That's like the iron rule of not talking to me before my second coffee in the morning.
I am only explaining what I think are the possible reasons why it has not been possible to change masks for a few days now.