Page views: 1,041 If, like me, you are dependent on outside help for every little thing, no matter how small, a structured daily routine can be enormously helpful, even for a crazy slob like me. Display The current daily schedule is shown on the large portrait-format POI display. You can see everything here: which therapy is due, which doctor is coming when and why, when I...
Page views: 967 Note: If you don't do everything yourself... I'll rewrite the medication plans as soon as I can find an hour to do it. Because the ones I had from the old nursing service were so wrong. It's an indictment that in eleven months they haven't managed to at least correct this and document it properly. The following medication plans are...
Pageviews: 1,035 Yes, I know that there is something like this somewhere in the file of every care service. Theoretically. Maybe even practically. But even then, such plans remain pure theory. They don't work in practice. I've experienced things that you can't imagine. A carer (who doesn't speak German, English, French or Spanish) seriously...
Page views: 1,228 It really doesn't take much to make me happy. As is so often the case, it's the little things that make life more beautiful. My fingers are constantly contracting. Unfortunately, this not only looks like shit and isn't exactly healthy, but it's also uncomfortable. So please stretch my fingers out again at every opportunity. When I...
Pageviews: 1,109 As well prepared as we may be, no matter how much time we spend together, there will always be situations where you don't have a clue what I need. When I sleep, for example, I wear the nose-mouth mask. Under this, it is physically impossible to generate positive pressure when exhaling without using your own muscle power. I can therefore use this...
Pageviews: 1,010 Some of these things hurt like hell, others are just frustrating or will annoy me to death if I live long enough to be annoyed to death. Still others are directly related to my breathing. They immediately affect everything in my body. There's no room for discussion. What...
Seitenaufrufe: 1,206 Diese Sammlung von Anleitungen habe ich selbst mit meiner Augensteuerung geschrieben. Ich habe dafür bis zu 18 Stunden am Tag vor dem Monitor verbracht. Ich fände es deshalb schön, wenn du dir die Empfehlungen von mir sehr genau durchlesen und beherzigen würdest. Pflegeanleitung, Hilfsmittel für Neu- und Quereinsteiger, Fassung vom 22.07.2022, P. Ruppelt 2022 So steht es...
Seitenaufrufe: 1,436 Es ist eine ganze Weile her, dass ich Probleme mit meiner Krankenkasse hatte. Seit ich eine persönliche Ansprechpartnerin habe, die Verständnis für die vielen, oft nur kleinen, aber praktisch immer sehr besonderen Gegebenheiten und Umstände von ALS Erkrankungen aufzubringen vermag, läuft die Sache. Zumindest in der Theorie. Denn leider hat auch meine übliche Bearbeiterin irgendwann Urlaub. Oder...
Seitenaufrufe: 1,383 Meine Fresse. Für kein anderes IT-Produkt bin ich so dankbar, dass es so etwas gibt. Aber meine Fresse, das Teil hat mich so manchen Nerv gekostet. Es ist mit Abstand die beste Hardware und beste Software, die ich aus dem Segment der PC-Augensteuerung kenne. Aber ich und meine Ansprüche wieder. So ein Riesen Fickfuck. Ich würde mich...
Pageviews: 1,096 Awesome shit. You'd think there was nothing going on in my life. And yet I'm plagued by the little bit of conscience I still have. I haven't answered so many messages, or at least not properly. So many lovely people who shared my original post (and there were hundreds of them in the first few hours alone)...
