Page views: 1,030 Hi there, it's a thing with the radio. Pretty much everything is repeated all the time. People are only too happy to claim that there are so many good musical, factual or other editorial alternatives that could be broadcast. Of course there could be, but every station that does this hasn't made it into the mainstream...
Seitenaufrufe: 722 Liebes Tagebuch, also das ist jetzt wirklich mal eine coole Sache, die ich mit der tatkräftigen Unterstützung meiner Schwester endlich mal fertig einrichten konnte. Die Hardware ist ja schon ewig und drei Tage eingebaut und angeschlossen. Aber mit der Einrichtung der diversen nötigen Apps hat es sich bisher mehrfach als nicht so ganz einfach herausgestellt. Das jetzige...
Page views: 780 Last time I tried to explain what changes occur to the nerves as a result of ALS. The bottom line is that I can hardly move anything any more - keyword tetraparesis - but I can feel and sense everything as I always have. And also want to feel. My girlfriend gave me a „scratcher“ for my birthday, a telescopic stick fork scratcher...
Page views: 914 Today, for a change, I'm not complaining about my care service or moaning. Quite the opposite. Today I want to tell you something about the real life of an ALS patient. Something you won't find in any textbook. Why doesn't anyone write about such things? Good question. Probably because it doesn't make any money and...
Page views: 684 Dear diary, help me. I don't want to have to lie in my nursing bed again and watch a trickle of blood run from my mouth into my pillow. After all the trouble and stress I've just had because of my bleeding gums, I've had enough for the next few weeks. I already have a toothbrush ban...
Page views: 707 Phew! Dear diary, can I even put you through this? But if not you, then who? I've been trying to meet someone in charge for weeks. PDL, GF, someone who has something to say. We've made several appointments over the past few weeks. But without exception, all of them were cancelled by the management. Most recently, I received two new appointment proposals,...
Page views: 749 Dear diary, am I doing something wrong? So probably yes, it can't be normal. But then what am I doing wrong? Or do other patients have similar problems? I don't think so, that would be tragic to the power of ten. The bleeding has stopped. The panic still has a firm grip on me. 3 Tavor Expedit and 10 drops of morphine directly under the...
