seltenekrankheiten

Basic care

Page views: 585 Well, basic care. What is there to say? Not much, you're the professional. I think a few key points will suffice. This was the end of my original description of basic care. But then everything changed. I was wrong. It's not clear how basic care should work for me after all. What specifically...

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Oral care

Page views: 520 If my carers had followed these instructions, they would still be relevant today and I would have been spared a lot of grief: When it comes to oral care, one thing is important above all else: Not wasting time and not scrubbing my gums. If the toothbrush switches off, the maximum recommended brushing time has been exceeded. We brush our teeth, not the towel underneath, not the...

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Facial care

Page views: 563 Wiping your face with lukewarm water is enough for me. A little shower gel every now and then is okay, but no more than that. However, if you use shower gel, I insist on rinsing again with clear water afterwards. And one more request: Before you soap me up in anything, look at what you're holding. Save us the...

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Urination ("wee-wee")

Seitenaufrufe: 576 Ich bin zwar nicht inkontinent, aber durch die verkümmerte Leisten-, Becken-, Gesäß-, Bein- und Bauchmuskulatur fällt es mir schwer, Urinreste „rauszudrücken“ und zeitweise auch, binnen Sekunden auf Knopfdruck zu pinkeln. Du brauchst deshalb nicht die ganze Zeit bei mir stehen und die Urinflasche oder gar meinen Penis halten, wenn ich pissen muss. Wer immer euch das in...

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Hygiene and care

Page views: 639 My absolute favourite topic. I was told that you don't have to explain something like that. My experience is of a different opinion. Because in the past, carers have managed it - several times - even despite verbal explanations, And so I am of the opinion that yes, of course I have to explain to you what I value and what is important to me. From where...

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His first time.

Page views: 685 Yay! The next excitement. Dear diary, it would be boring if nothing absurd happened. I'm introducing a new category for this: Patrick's panopticon. Panopticon, an awesome word. A rarely used word, but one of my favourites. Maybe even my favourite, or maybe not, but it is. The Brockhaus says: Panopticon [from the Greek optikós „the...

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Team building undesirable.

Seitenaufrufe: 633 Liebes Tagebuch, ein letztes Mal hat es die Geschäftsführung meines Pflegedienstes geschafft, auf ganzer Linie zu enttäuschen. Wieder einmal hat man mich verarscht. Ja, krasse Wortwahl für eine krass beschissene Situation. Ein Drama jagt das nächste. Da hat mir die Geschäftsführung nach dem letzten Eklat so vorgeschwärmt, was sie in Hinblick auf die zu besetzenden Vollzeitstellen planen...

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Positioning of my right ear

Pageviews: 558 Due to the fact that I tend to spend much more time on my right ear than my left, I quickly run the risk of it becoming sore. There are certainly many „recognised“ techniques and aids to prevent this, but the following, totally simple and convenient variant also works for me. All we need for this is...

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Shift, change.

Page views: 766 So. Now it's getting entertaining. As always, I won't name names. But I am taking the liberty of copying whole passages of text because they are necessary to understand the overall situation. My nursing service may criticise me for not making this information public. Yes, that may well be the case. But then the nursing service management would not have told me in my own...

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Stretch and extend fingers

Seitenaufrufe: 641  Ich weiß es ist nervig. Aber glaub mir, noch nerviger als mir ständig die Finger auszustrecken ist es, ständig zu spüren, wie sich die Finger zusammenziehen und nichts dagegen tun zu können. Strecke meine Finger flach und gerade aus. Drücke sie dann leicht durch, sodass sie gedehnt werden. Halte diese Position etwa zehn Sekunden. Lasse meine Finger...

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