seltenekrankheiten

Alternating shift.

Page views: 626 Have I ever mentioned that nobody likes know-it-alls? It was a rhetorical question. Of course I've mentioned it before. Several times, to be precise. But if that's the case, and you're still reading, what reason would I have to change now? Quite apart from the fact that people don't change....

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Drive down again (lie down)

Page views: 604 I think the shutdown is self-explanatory. Just one thing: I put my head on the right side for much better breathing. I do this deliberately, it's the way it's supposed to be. Even if it looks to you as if my neck is going to break every second, believe me, it's all right. ? As soon as...

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A second eye control is needed.

Page views: 673 It doesn't help. My eye control is more and more important for survival. Once again I couldn't make myself noticed this morning because the mask slipped and tightened when I put it on. It's really rarely stupid. I'm lying there, listening to my carer in the kitchen, in the dining room watching the documentary, at the coffee machine. Whilst I've been lying there for 15...

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Physio exercise 3: Nerve-protecting positioning

Page views: 604 The third and final exercise in this series requires no effort at all, but is all the more effective. This is about positioning, which should ideally be done after the other exercises. As usual, I lie on my back with my head turned to the right. Normally, my arms are relatively parallel to my body. For this...

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Lateral position right

Page impressions: 620 The storage on my right side is exactly the same as on the left side, only - surprise - mirror-inverted. My gaze is directed towards the balcony door. Because it is so important and is constantly forgotten, I emphasise three things regarding the lateral position in both directions with particular stress:

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Who needs food?

Page views: 713 Dear diary, I had actually resolved to swear less. And what kind of ideas do I come up with? Yeah, I'm creating a new category called „excitement“. Now that's what I call failing with a bang. But I also have topics on the table all the time that you can only shake your head at. The fact that I have to deal with...

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Lateral position left

Page views: 722 The most important thing: my head and neck have to be fully supported by my three pillows. My neck muscles are too weak to support my neck on their own. If my neck is not properly supported, I wake up with a sore ear after a short time. This is because the entire weight of my thick skull rests on this one ear. That's actually...

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Physio Exercise 1: Pull out the shoulder blade

Seitenaufrufe: 697 Meine Übungen zielen darauf ab, den gestressten Nerv zu beruhigen, der vermutlich irgendwo der Wirbelsäule entspringt, hinter den Schulterblättern zu den Achseln verläuft und dann durch den Arm bis in die Spitze vom Daumen reicht. Das war jetzt wahrscheinlich vollkommen anatomisch inkorrekt, aber hey, ich bin weder Biologe noch Arzt. Ich schreibe hier kein Lehrbuch.Ich sage nur,...

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Pain, let go.

Page views: 625 Dear diary, not so long ago I wrote something about how little pain I generally feel. Or at least I don't let it show. However, there were one or two things I forgot to mention. In my last post on the subject of pain, I only referred to acute, or if you want to call it that, spontaneous pain...

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Put legs up

Page views: 896 In the meantime, my physio is pretty much the only time my legs are mobilised. That's not enough. And you can tell. I'm losing my mobility, my muscles are atrophying due to illness anyway, the ligaments and tendons or whatever it is are shortening so much that I can't put my heels up to my bum....

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