seltenekrankheiten

Except for the area around my eyes, nose and parts of my cheeks and jaw, I have already lost control of my physical self.

After six days, the wound has still not healed. Despite daily dressing changes and Lavanid application, new purulent exudate comes every day.

Exciting topic. Because without a good night's sleep, I'm good for nothing. That's like the iron rule of not talking to me before my second coffee in the morning.

The time has come for me to feel the need to do some educational work on ALS. Not in the sense of hard facts.

It was less than a week ago that I had a mask put on at night with half of it missing. Tales follow about parts that must have fallen under the bed.

Now the whole discussion is starting all over again. Only this time it's not about the PEG, but about the cannula. Really? C'mon guys, give me a fucking break, please.

Page views: 866 Nothing but stress and trouble And there it was, the PEG. Secretly, quietly and silently. Kaboom. To be honest, it was planned a little differently, my reporting. I hadn't intended to wait over three months to do it. But it wasn't planned that I would have a lot of problems for the first eight weeks due to the...

Page views: 892 The change from nose-mouth mask to nose mask typically takes place: Here we go. As usual, I lie on my back with my head turned to the right. You have of course cleaned the nose mask and laid it out with the straps open and not twisted. You lift my head slightly and turn my head straight to the centre. As with the other change...

Pageviews: 907 What follows is the much-publicised sexy photo love story of my masks and me. We start with the change from nose mask to nose-mouth mask. Here's what happens: Good preparation is half the battle. Prepare the nose-mouth mask. Open the lower magnetic fasteners on the lower straps. Make sure that the upper straps are correctly inserted into their respective holders and are not...

Pageviews: 787 Changing masks is probably the topic that stresses everyone out the most. That's why I've described every single step in detail and illustrated everything with photos of myself. If you follow these four principles, nothing can go wrong: