seltenekrankheiten

That could have backfired badly. We were lucky in our misfortune. Does someone have to die for something to - maybe - happen? My doctor is convinced that I should have been fever-free two days earlier.

Page views: 524 This is roughly what it looks like when I say the screenshot is self-explanatory. Here, for example, is an email that caused my doctor a lot of incomprehension and resigned head-shaking in the second half of the week. As funny as this may sound ex post, we're still talking about two days of unnecessary fever. And this is what my message looked like:...

Discussion with a carer about whether it is really a nail fold infection, as my doctor claims. She is of a different opinion. If she has her way, I'll have to get a new chiropodist straight away. Guys, she's getting on my nerves.

What kind of week was that again? Hardly a night without trouble. Last night? It was okay, I think. I'm about to file what happened under „unimportant, forget it“. That's how I started writing my text. Yesterday. Today? I'd have to revise that. After four hours of sleep, I had to be vacuumed badly. Reason follows. After all, I said that...

Page views: 562 Welcome to my world of a maximum of 3.5 hours sleep. Been like this for about two weeks now. Even in the presence of my sister and taking photos to explain, I'm told I'm wrong. The mask is on correctly. Apart from pulling it even tighter - which doesn't make it blow into my eyes any less, it just doesn't even blow into my eyes any more...

Page views: 486 Dear diary, ouch. This week is already off to a good start. If I don't publish anything at the weekend of all days, it's usually for the same reason. Without wanting to attach any importance to it: Maintenance. And without wanting to put a stamp of approval on care, individual positive achievements cannot hide the miserable overall performance of my care service. True story....

I inform my nurses and still inform my doctor. He comes by immediately. Inflammation again. Pus. Blood. Some contaminated ointment residue. Swab taken from the skin and sent to the lab. Thank you. To the whole team.

I would have to have a PEG inserted. Because then I could be mobilised in a wheelchair and pushed out onto the balcony, as living in bed has no quality of life. That's what I was told by the care counsellor at my care service.

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This post is only visible to members. You can register for free on my blog and look forward to lots of extra content. If you have already registered, please log in here. And if you would like to support my personally selected conservation projects, you can also do so with your membership. Click here to register.